Posted (Tina) in All Posts on October-29-2008

Ella was feeling better today. Her cold is still hanging on, but you could just tell that she was feeling more like herself. I mean, she even kept adjusting her headband to an 80’s aerobic style. If she keeps up the foot grabbing too, she’s going to turn into an Olivia Newton John look-alike.

The PT session went great. Ella practiced sitting up, rolling over and having tummy time – – all things that will help build her core strength. Once again, we’re feeling so blessed that we have a great PT that understands Ella and has a sincere desire to help her reach her goals. That is a rare find.

Today, Grandma Eusey altered Ella’s halloween costume, so it can accommodate her g-tube. Nope, we can’t ruin the surprise. You’ll have to wait to see the Bun dressed up!

We know of another family that has arrived in Gainesville to have Dr. Kays help save the life of their baby with CDH. Please pray for their baby girl and her brother (twins) that are due to arrive in December (You can read their story here).

I ran into an inspirational devotional message this morning regarding burdens and I wanted to share an excerpt:

Our challenges vary greatly: a single Christian mom may have the awesome responsibility of raising children in an ungodly world that seeks to destroy them; an angry misunderstanding may leave the head of a household without a job; or a past sin can result in deep scars of guilt that weigh a person down. Regardless of the type of problem or its source, the question is, How are we to handle the burdens that come our way?

Jesus never vows to totally remove our difficulty, but He promises to deal with our trial in such a way that we no longer have to carry its weight. Some distressing situations—like terminal illness, caring for a disabled relative, or the death of a loved one—are permanent, as far as this life is concerned. Some people might find the idea of an ongoing trial discouraging, but the Christian must remember that we are not to handle these matters in our own strength. God wants to lift our load and carry it for us. He personally invites every one of us who is weary to find refreshment in Him.

Of course, all of us would prefer to bypass painful circumstances, but the Lord knows that our hardships and heartaches—the things we are unable to handle on our own—form the fertile soil for our spiritual growth and increasing dependence upon Him. How can we know Jesus Christ as the burden-bearer unless we get under a burden ourselves, try to deal with it our own way, and then experience the relief of letting Him carry its weight?

Oftentimes, the difficulties God has sent or allowed in my life have been so unpleasant that I prayed He would remove them. However, when I looked back later and realized all that my suffering had taught me about the Lord, I prayed, “Thank You that You knew better than I did. Thank You for not making it easy.”

Psalm 55:22 (NLT)
Give your burdens to the Lord,
and he will take care of you.

Kim Chavez on October 29th, 2008 at 11:11 pm #

you guys are amazing! and, ella is simply adorable!

Laura (Saudi Arabia) on October 29th, 2008 at 11:58 pm #

I went to the site to visit Olivia and Mason, and then went back through Ella’s journey. What a road, what a blessing, what a God we have! Ella has blessed us all, thank you for sharing about Olivia and thank you for sharing Ella. Blessings Laura

Joel Snyder on October 30th, 2008 at 2:25 am #

Ella, You look fabulous darling and I am thrilled that PT is going so well. I can’t wait to see what Grandma and Mom and Dad have in store for us with your costume for Halloween. Tina thanks for the information on Olivia and Mason. I will be praying for them and it brings back the memories of Ella and her journey. I will check on all of you tomorrow. Love,Grandpa!!!!!!!!!!!!!!

Sherl on October 30th, 2008 at 6:31 am #

I to will pray for Olivia and Mason. I had never heard anything about CDH. Dr. Kay was right about the roller coaster ride. Thanks for your blog with informing us about CDH and for the people who will experience what you’ve been through. Your inspiration is amazing and very helpful in everyday life. Ella is a beautiful child!!!

Jen Miller on October 30th, 2008 at 6:53 am #

You have me laughing out loud with this post and those pictures. I think you have a future dancer on your hands! I read your blog every day, although I don’t post often. Just wanted you to know I continue to pray for Ella. I do have to admit I enjoy these posts much more than the surgery posts! 😉 Feel better Ella!

Jen Miller

megan on October 30th, 2008 at 8:01 am #

Doodlebug this entry makes me laugh because I used to watch her show.. I am so happy that things are going so well. I can’t wait to see your halloween outfit. Have a fabulous day!Hugs

Super Nanny Kelly on October 30th, 2008 at 10:52 am #

haha tina. Nice references!!!

Hearing you talk about Olivia and Masons journey, along with mom and dad, was so heavy and huge last night. It brought a lot of things into perspective for me, considering I’ve come in “late in the game” at full force. I just try to imagine the first few months for Ella and Josh and Tina and it amazes me to look back and read about the journey, and now be such an integrated part of it. I’m just constantly amazed at what God has done for me, readers of the blog, you guys, other CDH babies and parents, through Ella and her fight and struggle. Simply baffled.

That devotional is so spot on, I think. God makes things hard in order to give us reason and opportunity to depend cult on Him. If things were simple, we’d never need a reason to rely on Christ and what He did for us. And so we struggle. We fight. We hurt, we grieve, we vent, we get flustered. But in the end, we let down our barriers and walls and defenses and let Christ invade our hearts and lives with His Truth, His compassion, His message, and His love, and we fall at His righteous throne, solemn and hurting and He picks us up and carries us. He doesn’t just let us walk with Him, He actively picks us up off the floor, no matter what state were in, and he comforts and holds us. Forever.

Its just so good to reflect on that, I think. That we can be hurting and not totally at peace with things but God still loves us, totally and completely. Through our struggles and our pain ad our doubt. He loves us and he cares for us and he carries us ad holds us. Wow.

Love you guys!!!

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