Posted (Tina) in All Posts on April-22-2009

Ella was in an especially great mood today. It’s so much fun to be with her on these types of days. She slept really well last night, even though she did not retire until 11pm…that little night owl!

You can still hear her struggling with her snotty nose the slightest bit, but it does seem like it is slowly fading. When she is in this great of a mood, it sure seems like she must be feeling better physically.

It was a beautiful, sunny 75 degrees today. Such a nice change of pace from the recent blizzards! I went and met the director for String of Pearls for lunch. It was so nice to get out and have companionship time with someone who really understands what is going on right now. It is just nice to know that whatever happens in the coming weeks, we have support and do not have to go through it alone. She learned of 4 other families this week in a similar circumstance (2 in Colorado and 2 in another state). It just makes you realize that this scenario is likely a lot more common than we all think. One thing is for sure, she has a gift of sympathy and a talent to run a non-profit organization that is doing a tremendous job at helping families navigate through the tough news.

We’re looking forward to the warm weather tomorrow as we venture out to the Children’s Hospital and have Ella’s follow-up tests. Praying for good news…

Matthew 6:33 (NLT)
Seek the Kingdom of God above all else, and live righteously, and he will give you everything you need.