Nope, I’m not talking about ice cream. Last night was rough for Ella…and Mom. We got very little sleep.
Unfortunately, the lack of beauty sleep led to a cranky Bun throughout the day. She sounds congested again, so she may have caught another cold.
Ella did take lots of little naps today in between trying to work on her feeding. She took around 90ccs total out of the bottle. She has such a desire to feed via the bottle and is doing really well getting the hang of it. If it weren’t for all the air she swallows and the grief it causes her each time, I think she would be further along. Even though we vent her g-tube at the same time, it does not eliminate the episodes of pain that she has to endure.
When we get a chance to go to the pediatrician next month, we are going to ask about other foods we can introduce for Ella. We have to be careful because of her fluid issues, but it just seems that the oral stimulation from her taste buds is so enjoyable to her. Maybe foods with more texture could also provide more calories and not cause the gas pains.
We were supposed to have an appointment today with the OT to work on feeding issues, but the therapist was ill. But we did discuss the strategies of what we have been doing. For example, I asked about other types of bottles. He told us that the one we are using is one he normally recommends and he doesn’t want us changing it on Ella while she is making forward progress. We are hoping that we can get some more hands on training next week.
I’m excited that it is the weekend. This means that I might be able to get more sleep!
We pray that Ella’s weekend will prove to be restful, that she will gain strength and that her health will improve. We’re so blessed to have our little Bun.
Psalm 119:148
My eyes stay open through the watches of the night,
that I may meditate on your promises.
