We sit here in disbelief that our baby girl is already 8 weeks old!!! Holy cramole…time both flies and crawls at the same time. =)
Ella had a good day. Her stats were stable and her latest blood gas at 8pm was looking good (cO2=59, pO2=90). Her chest tube fluid output was 37 for the day when we checked at 11:30pm.
We saw Dr. Kays this evening. He confirmed that we’re on a slow boat to China, but the boat is moving, and in the right direction.
He pulled up Ella’s most recent chest x-ray so we could take a look. It looked pretty good, better than a few days ago for sure. Both lungs were more defined which indicated less fluid in her chest.
His plan is to take a chest x-ray each morning. If the chest x-ray looks good, the plan will be to simply maintain stats and good blood gases throughout the day (we should not be too concerned with her chest fluid output being lower for the day).
If her blood gases are not as good, her chest x-ray is hazy and she is not getting chest fluid output, he will look to replace the chest tube(s) again. He confirmed that besides aggressive surgery, this is the best plan for Ella right now until her body resolves the issue on its own.
She’s tolerating her food well. Dr. Kays has been pleased with her progress in this area and has increased her continuous dose of Portagen to 2cc’s per hour.
We still have a ways to go, but Ella’s progress is hopeful. Dr. Kays is hesitant to ween her ventilator while she’s dealing with this fluid issue because it can turn around and cause her problems. This is why Ella’s fluid issues needs to be resolved, so she can take her next steps.
Thanks to all of you for your support. Please continue to pray for Ella and the fluid hurdle.
God Bless.
Jeremiah 29:11 "For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future."
Kristen on September 18th, 2007 at 9:07 pm #
Great to hear she is enjoying a little food in her tummy! What a precious baby! What an honor to pray for you. Blessings as the journey continues!
Joel Snyder on September 18th, 2007 at 9:58 pm #
Ella, Just came home to visit with Taco and Manny before I go back to work. You look very good and I will take your slow steady progress anytime. I am praying for more progress in the fluid reduction battle. Keep up the good work “Gator Girl” I will check on you in the morning. T&J thanks for the update. I Love and miss you. Grandpa!!!!!!!!!!
Char Snyder Jordan on September 18th, 2007 at 10:04 pm #
Hi, Jimmy,Art and Geni, Jims daughter and her husband and of couse I went to Catalina Island for the day. It was our usual run. We often take family there for a different view of Southern California. We had a nice time but I am very pleased with Ella’s forward trek to health. Keep going Ella. We will pray for continued progress with the fluid issue. All our love, Aunt Char and Jim
Roberts Family on September 18th, 2007 at 10:29 pm #
Just checking in before bed in the Pacific NW. Even though we don’t know you, you have become a special part of our day as we check for updates and pray for you and Ella during our day. We are so happy to see improvement. When my children are trying to race through their work, I remind them “slow and steady wins the race”. So, Go Ella!!!
JoAnna King and Kids on September 19th, 2007 at 6:25 am #
Thank you for the update. The kids and I will continue to pray for her chest fluid to resolve itself. The human body is truely an amazing creation. Love you guys.
Joan Odell on September 19th, 2007 at 7:04 am #
What blessings!!! She looks so good and knows her Daddy. Some times slow boats are good – you smell the roses!! Our prayers continue for her, both of you and her caregivers. Keep moving forward baby Ella!! Hugs and prayers – STeve and Joan
Loren on September 19th, 2007 at 7:40 am #
Ella sure it filling up her little bed. Soon her mates will need to get off the Boat! Did you know today is National Talk like a Pirate Day! Who even knew we had one! Everyday we see what a hard worker Ella is. Post a comment
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