Posted (Tina) in All Posts on February-3-2008

We had a Superbowl party in her hospital room. Yes, Ella enjoyed lounging in bed with her blanket and binky watching the New York Giants fight for the championship.

Up until the Superbowl, it was a pretty uneventful day for her. The pediatric surgery team rep came to see her this morning and talked about how she continues to retain fluid (positive 120 each day). Yet, they need to get her dry so they are considering a dose of IV lasix. At the end of the day, it was decided that they would wait and see what her input/output numbers are today. Please pray that her IV in her foot will remain viable, so that IV lasix is an option.

Ella slept on and off all day and was fussy at times, mostly due to teething and/or gas in her tummy. A couple of times, it required an increase in oxygen.

Her poor nose is also still congested from the cold she got a few weeks back. Sometimes it gets so bad that she can’t suck on her binky (babies only breathe through their nose at this age, so it will literally get so bad that she can’t breathe). When this happens, we have to suction her nose and she hates that process. I can’t imagine that any baby enjoys the suction process, but Ella will get so mad that she will turn bluish-purple if her oxygen is not increased. Please pray that her congestion will be relieved as it is certainly not helping considering all her other issues.

Ella seems to be tolerating her new food although it has been giving her tummy some grief. This happened last week when she was switched to Similac. We hope that since it is supposed to be easier to digest, that benefit will kick in soon.

We had a friend drop-by today that lives locally that we met in the NICU 2. Him and his wife are just so sweet – – they brought me a comfy pillow to sleep on at night (I have been sleeping overnight in Ella’s hospital room), a really soft blanket for Ella and some sweets to cure any hard day. Such a blessing to be surrounded by those that love and care for us during this time.

We are anxious to see the nurse practitioner and/or Dr. Kays tomorrow, so we can hear the updated plan. They need to figure out a way to get Ella dried out. Not sure what that will be, but interested to hear it.

Please continue to pray for Ella’s strength and for wisdom and discernment from Dr. Kays and the entire pediatric surgery team who is overseeing her care.

Laura Marold on February 3rd, 2008 at 8:44 pm #

Just checking in with the bun and her mommy. What a couple of beautiful girls. Keep up your strenghth as best you can, Tina. I’ll be praying for you. Love, Laura M.

Williamsburg on February 3rd, 2008 at 8:46 pm #

Hope you weren’t counting on the Patriots, Ella – was an exciting game any way you slice it. What an amazing Mom you have, precious one – we thank and praise God for both of you and for the journey He is on with you. No mother’s road is easy, but Tina, yours has been intense beyond what most of us can imagine, and yet you continue to be an incredible witness to mom-hood and your faith in every circumstance. Everyone you know is praying and pulling for you, but you have a special place in the heart of every mother who knows you. Blessings to you, daughter, sister, wife, friend, incredible Mom. XOXOXO

Char and Jim Jordan on February 3rd, 2008 at 9:25 pm #

What a beautiful picture of you and Ella. Please give your dad a hug for me. We are praying that all will go well. That Dr. Kays will have inspiration that is needed and that Ella can get dried out and her parents can get some sleep. Our blessings on your day. LOL Jim and Char

Kristen on February 3rd, 2008 at 9:34 pm #

Praying for Ella to be comfy and get some rest while you are wating for the fluid issue to clear again. Blessings, Kristen

Lesli on February 3rd, 2008 at 9:40 pm #

First night I am up late enough to catch the Bun update…usually it’s in the morning! She is just so sweet. We are praying that Dr. Kays has just the right answer tomorrow.
Love, The Richards

Tracy Schultz on February 3rd, 2008 at 10:02 pm #

Glad to hear things are getting better. If her teeth are bothering her and her sinuses, sitting her in as much as an upright position as possible is really helpful. Ear pain almost always comes with underdeveloped ear canals, stuffy noses, and teething. It’s a triple threat! :0)
Praying for rest, peace, and pee for Ella. Just rest and peace for you guys…:0)

Laura Arneson (Adrienne' friend) on February 4th, 2008 at 12:22 am #

Ella must have been a NY fan! Goodness you all have been through it, we will be sending prayers your way through the night, love the prayer for peace and pee. Blessings from Arabia.

Chambers Family on February 4th, 2008 at 7:14 am #

A chair for Ella. I wish I still had mine I would send it to you — It is called a Bumbo seat and it is so cool. If fully supports a little one sitting up and now they come with cool trays and fun toys…

If sitting up might help her and give her a better view – then you will love that little seat. (not meaning to sound like a commercial)

Emery really liked his chair and I traveled with it since it doubled for a highchair at mealtimes!

We hope you are able to rest and get home soon! Daily thoughts and prayers to you.


Julie Kirk -Saudi Arabia on February 4th, 2008 at 10:37 am #

Prayers for your family from across the globe.

Avery Kronz on February 4th, 2008 at 4:12 pm #

keep it up Ella! You look so pretty! Love,Avery

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