Posted (jooosh) in All Posts on February-17-2008

Whew…I finally got a chance to come up for some air. I’ve been swamped with a project for work but I was able to get it done on time. The only reason I was able to do this, was because of my amazing wife who let me focus on work while she focused on the Bun.

Well, last night was my turn to give mom a break. Tina slept in the guest room, something she allowed me to do multiple times last week, while I spent the night attending to Ella.

Let me tell you, it is TOUGH taking care of her at night. When she’s asleep, it’s all good*, but when she’s fussing ’cause she can’t get comfortable, or she needs a diaper change, or she’s pulled her oxygen cannulas out, or her binky fell out, or her food pump finished too soon, things get a little rough. Especially when you don’t have any sleep, or are trying to sleep, or are hunched over her crib while falling asleep and your back cramps up.

*By the way, when I say she’s all good, she’s all good, but I still wake up every so often to see if she’s ok.

I’m sure most of this is “normal” for any baby this age, but I don’t have a concept of what is normal considering this is our first kid.

Anyways, Ella and I survived the night, no worse for the wear, and the multiple cups of coffee in the morning helped a little too. Coffee for me that is…heh. Ella and I did our best to let mom sleep in. She did pretty good too, stumbled out around 10:45am.

Ella did well with her feeds today. We did bolus feeds of 45ccs and she took all but one without issue. We think we’re also seeing a trend too. All the feedings that went down well occurred when she was asleep. The one that gave her problems was administered while she was awake.

Ella’s teething symptoms seemed to have intensified. She keeps rubbing her face and wanting to gnaw on things. She took my finger for a bit, but then it seemed to inflame her gums even more. We thought we would try some Anbesol but we haven’t been able to get to the drugstore yet.

She doesn’t like any of the different teething rings, which is why we’ve ended up letting her gnaw on our knuckles. I had an idea to put one of our fingers in ice water and see how she likes that. That didn’t work so well, but it spawned a better idea. Keep a couple binkys in ice water and swap them out every so often for her. We’re doing this right now, and she really seems to be digging it!

Overall, the weekend has been pretty restful. I have tomorrow off for presidents day which should give us one more day to rest and catch up on other life things, like taxes (yay).

Before I wrap this post up, I want to share about a special moment we had this week. In the midst of all the recent hospital drama, and Ella’s feeding issues, and everything else, we paused and took stock.

Last Tuesday we had our first clinical meeting with Dr. Kays outside the hospital. Normally, for anyone else, this is just a simple check up to see how your kid is doing.

But…wait….this is our Baby girl….the one in the picture at the top of this blog….the one who only had a 20% chance to survive in Denver…that baby girl….Ella…THE BUN!!! She really made it…she’s thriving…she’s gaining weight and making forward progress.

PRAISE GOD FROM WHOM ALL BLESSINGS FLOW!!! This was such a magical moment for us. And I think it really hit me in this “normal” moment, just how amazing our girl is, and what an incredible gift from God she is.

Thank you Lord for our miracle girl and for everything about her. She is EXACTLY who you desired her to be, and she’s perfect in every way. Thank you Lord…thank you…thank you.

Kristen on February 17th, 2008 at 9:58 pm #

Amen, thank you Lord!

John & Estela Williams on February 17th, 2008 at 10:02 pm #

She is perfect… Thank you Lord. You two are the perfect parents for Ella as you have fought for her existence. Thank you Lord for Josh and Tina. Love you guys!

The Rainey Family on February 17th, 2008 at 11:28 pm #

You guys are so amazing. I am so happy to see how well Ella is doing, and how strong the two of you are. All 3 of you are truly blessed, as are all of us who read about Ella’s progress. 🙂 Oh, and one other suggestion for the teething… when my son was teething, we used some of those thin baby washcloths. We got them damp, rolled them up, and put them in the freezer. They were softer and easier for him to chew on than some of those plastic teethers, which he never liked either. Good luck! 🙂

Kara on February 18th, 2008 at 1:43 am #

We kept spoons in the freezer for the girls when they were teething. Just remember to rinse them first or you’ll get the tongue to pole effect.

Carl and Cathie Firestone on February 18th, 2008 at 6:32 am #

You can try soaking washcloths in water and freezing them…our boys loved to gnaw on them when they were teeething. Baby oragel works wonders too! You guys are doing great and so is sweet Ella…what an amazing gift from God! We continue to pray for all things “normal” for all 3 of you!
With Love, the Firestones

Matt, Abby Austin & Caed on February 18th, 2008 at 9:42 am #

Each day is such a gift…such an opportunity given to us…I pray that none of us take it for granted. We love you three and continue to pray for you every day.
The Lord lives! Blessed be my rock! May God, the rock of my salvation, be exhaulted!
2 Samuel 22:47

Joel Snyder on February 18th, 2008 at 10:19 am #

Ella, What a great way to spend the night and morning with Dad. I am hoping that you will keep up the steady progress. You look terrific and so does Mom and Dad. I will check on you tonight. Love,Grandpa!!!!!!!!!

Todd Katler on February 18th, 2008 at 6:17 pm #

Congrats to all! It’s great to see the little gal coming along so fabulously.

The Lizotte Family on February 18th, 2008 at 6:27 pm #

She looks so happy!!! We had a teether with built-in vibrations. Roni loved it. I will keep praying for you. Big Hugs!!!

Chambers Family on February 18th, 2008 at 9:06 pm #

Great Daddy and Mommy Teamwork! Many Dads are fearful of taking care of the little one – let alone one with CDH! Yeah Josh! Big points for letting Mom sleep in! Call my husband please!

Char and Jim Jordan on February 18th, 2008 at 9:23 pm #

I just love to read all the suggestions that everyone has tried. It’s just about as varied as we humans tend to be. We love you! Aunt Char and Jim

Dawn (Tamara's Friend) on February 18th, 2008 at 10:04 pm #

Amen and Amen!

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