Posted (Tina) in All Posts on March-12-2008

Yep, today was the first day that Ella tolerated her sunglasses.

We tried them a few weeks ago on a walk, thinking that it would help her eyes adjust. She would have nothing to do with them. Well, today she was feeling more adventurous. I put my sunglasses on to join her. We were having a great time.

Ella slept well last night and got up around 5am. Nurse Michelle came over for a visit this morning. We grabbed a coffee initially, just having some one-on-one time. Then, we returned so Josh could start work and stayed with Ella.

Normally, Ella is in a good mood, especially with her nurse friends. Today, Ella was crabby. She was fussy and was not interested in being held or entertained by Michelle. When she was having major meltdowns, I would take her into my arms and she would calm down within seconds. Michelle looked at me and said, “I think she is having a Mommy day”. Today is the first time that I have experienced a Mommy day. In other words, it did appear that Ella simply wanted her Mommy. That was a new thing for her and me.

We have been trying to get in touch with the physical therapist, but have not had success. Ella and I did play a lot physically today by just rolling on the ground, moving her legs, stretching, etc. We had a good time. She was smiling for most of it and I could tell when she had enough and was getting tired (it didn’t take much).

We took a later lunch break and drove over to our old apartment community. They called the other day to let me know that a package had arrived for me. I wondered who had sent a package to my old address. When Josh walked in to get the package, he was instantly recognized by the staff. Sara, the leasing agent we worked with in the past, greeted him and was so excited that Ella was outside in the car. She made a point to come outside and see Ella in person.

Unfortunately, Ella was not real happy from the car ride and her general mood for the day. So there were no smiles for Sara. But it was nice to see her and know that she has been keeping up with Ella’s progress via the blog. We had no idea. It was just a blessing to be surprised by someone who had such a genuine interest and concern for Ella.

Back to the package, it was a sweet surprise from four of my colleagues, who are truly my friends. Once again, another complete surprise for the day. It was so nice for them to think of me and send me a gift to let me know that they will miss working with me. I feel spoiled!

We did not hear back from Dr. Kays office regarding the oil for her nightly feeds nor the results of her labs. We are expecting that information tomorrow.

Also tomorrow, we are going to see Dr. Sarantos. We’re excited to see her since it has been a month and we are looking forward to discussing some ideas for Ella related to food/weight gain. We’re not looking forward to the synagis shot, but getting blood drawn is worse, so I guess we’ll take it without too much complaint.

We know that with each day that passes, Ella is growing and getting stronger. We sense that it is going to be slow, but steady movement forward. We are trying our best to remain focused on why we are here in Gainesville and why I placed my career on hold: to give Ella the best chance at life. That is the entire reason we came to Florida in the first place.

Please pray for us, as her parents, that we will continue to be refreshed for the journey. We are looking forward to the idea of going back home, but know that we need to be obedient through this season while we are in Gainesville. Some days though, it is tough.

Fortunately, we have a obvious reminder of Him and His love when we look at Ella. We simply need to focus on that truth and what He has called us to do…and give Him our worries and concerns.

We thank everyone for your support and prayers.

the Lizotte family on March 12th, 2008 at 7:32 pm #

I love girls in shades. It’s always cooler in the shade anyways. And here in Florida you Always wear shades. It’s now become part of my daily routine to throw a pair on. I used to buy the expensive ones, but I learned that the cheap ones do the trick and I cry less when they brake. Roni is on her second pair, the first were called her Rockstar shades, the new ones are her Lightning shades. You are doing great just add another notch on the moving chart and go to the next one as soon as you can. Prayers will follow you no matter where you go folks.

Jim and Char Jordan on March 12th, 2008 at 7:48 pm #

You are all quite a family. Thank goodness you feel blessed. We love you and are constantly praying for your success and happiness. LOL Aunt Char and Jim

Kristen on March 12th, 2008 at 7:54 pm #

Tina, You are such a fantastic mama, how can you blame the Bun for being partial to you? 🙂 By the way you both look fabulous! Kristen

kristin on March 12th, 2008 at 8:21 pm #

The Bun looks HOT in pink! She knows how to work her fashionista side…got that from her Mommy!

The information you all receive tomorrow will be positve.

Your first Mommy Day! These are what will get you through just about anything!

Huge prayers and love surround you all.


Joel Snyder on March 12th, 2008 at 11:47 pm #

Ella, You and Mom look great with your shades on out in the Florida sunshine. Say hello to Dr.Sarantos for me and I hope you can keep up your steady progress. I have an appointment for Taco at the Vets and will be going to Lone Tree. I will check on you later. Love,Grandpa!!!!!!!!!!!!!!

Williamsburg on March 13th, 2008 at 8:39 am #

What a twosome – you two definitely put those so-called celebrity moms and babies to shame! I think you do realize this, but just know what an incredible testament to faithfulness your journey has been – yours to God and His to you, and what amazing blessings have come from it, not just to your own family but to such a wide circle of those who love you. We do absolutely pray daily for your strength, courage and endurance as you see this often-difficult stage of the journey thru – and having those Mommy days just makes it all the more worthwhile, doesn’t it? Nothing else in the world compares. Big squeezy hugs to all of you with all our love. XOXOXO

Emily in Colorado on March 13th, 2008 at 10:22 am #

We’ve never met but my sister is a Pediatric Nurse at Shands and had Ella as a patient at one point. She shared your blog with me so I just now got to take a peek. My husband also went to UF (Go Gators!) Ella’s little sunglass picture just brightened my day! She is so adorable and I’m so glad she is here. If you all end up coming back to the Denver area I’d love to meet you! Will be thinking of you all.

Mollie Rosing on March 13th, 2008 at 10:26 am #

the shades are priceless! continued love and prayers.

mollie and family

Julie on March 13th, 2008 at 1:31 pm #

Re: the car…my son hated the car for about the first 9 months of his life. He screamed and cried the whole time and heaven help us if the ride was longer than 15 minutes.

Then one day, he just decided to be okay with it. The first time it happened, I was driving, lost in thought, and all of the sudden I noticed the quiet and panicked. OMG, I left the baby!

But no. He was there, sitting quietly in his seat.

And it may go that way for you. Someday, she’ll just decide it’s okay.

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