Posted (Tina) in All Posts on March-18-2008

Ella got lots of beauty sleep last night so I caught up too…that was a nice change.

Although Ella slept a lot, she was fussy most of the day. She had moments where she was very happy as I captured in the pictures. But her overall mood for the day was not great.

For feeds, I could only get her to take 10ccs twice today, for a total of 20ccs via bottle. After that, she was not interested. I tried rice cereal again and she would have nothing to do with it. At this point, it is hard to tell if she doesn’t like the experience as a whole, or if she truly doesn’t like rice cereal. Since she has tolerated rice cereal for a few days and it does not appear that she has an alergy, we’ll probably be able to try something else soon. Either way, we’ll try to see if we can entice her orally again tomorrow!

Before it became too warm, I took Ella on another walk today. She was tolerant and lasted for 25 minutes. There were moments of fussiness, but I seemed to be able to appease her with the binky and/or covering her completely from the sun (she gets warm easy and it makes her sweaty and uncomfortable). I hope that we can stretch out the time longer and longer.

Nurse Janet had planned to come over this afternoon to see Ella. Unfortunately, her plans changed and she was unable to come over and hang out with us. But, she still called and offered to bring over lunch. That was so unexpected and so sweet. The food was incredibly good and we were just in awe over her generosity.

Janet was able to run upstairs real quick and take a peek at Ella. She confirmed that Ella is looking good. She embraced and held her and after a few seconds, Ella started crying…and not a little cry, but a hard cry.

So, Ella is definitely getting stranger anxiety. If you remember, Ella did the same thing to Nurse Michelle last week. I know it is a normal baby response to have a preference for a parent, so in some ways, it is good that Ella had this response. It demonstrates a developmental milestone. At the same time, it is a bummer. These nurses love Ella and she would always smile at them before, so it is a good thing and sad thing at the same time.

We’re hoping that tomorrow is a day of progress forward for the Bun. As I type this, she is resting peacefully.

This afternoon, I took the time to reflect back on some photos of Ella. Can you believe that this is the same baby? This was when she was only 10 days old.

It is just amazing to look back at her story. And the story continues to get deeper and richer, yet already looking back, it is hard to believe all that we have been through since her birth.

We are so thankful for Ella Renae. She is a true miracle and the Lord most certainly has plans for her life. We hope that she reads this story someday and has confidence in the Lord, knowing that she was created perfectly in His image.

Jeremiah 17:7-8
7 “But blessed is the man who trusts in the LORD,
whose confidence is in him.

8 He will be like a tree planted by the water
that sends out its roots by the stream.
It does not fear when heat comes;
its leaves are always green.
It has no worries in a year of drought
and never fails to bear fruit.”

Kristen on March 18th, 2008 at 9:10 pm #

*sigh* Ella you are a miracle!

Jim and Char Jordan on March 18th, 2008 at 9:18 pm #

She is a delight. I know it is hard to have a fussy baby. It’s harder to have a wild teen. There is a definite difference. You definitey got the harder part. Hang in there. Things are bound to get better, or at least different. LOL Aunt Char and Jim

Sara & Kevin Allen on March 18th, 2008 at 11:24 pm #

She’s getting cuter by the day, or is that by the hour. You are doing awesome. I’ve heard it said, and found it true, to get your kids to try something new, you have to put it on their plate about 10 times. So.. Miss Ella is very normal to not wanting new tastes the first time. Hang in there, before you know it she’ll be swiping that yummy lunch someone brings you.

Joel Snyder on March 19th, 2008 at 12:39 am #

Ella, You truly are a ham when it comes to getting your picture taken. It seems like you are starting to get a sleeping cycle going and I am praying that you get an eating cycle going with it. I will check on you later. Love,Grandpa!!!!!!!!!!

Lisa on March 19th, 2008 at 4:38 am #

A friend of mine gave me this web page and I have bee following your story. It amazes me to see how far Ella has come and what a miracle she is. It does make you praise God for all his works.
Have you tried a little pear juic in her rice cereal? My daughter refused rice cereal, but LOVED oatmeal with pear juice.

Tracy Mitchell on March 19th, 2008 at 5:32 am #

She looks so precious!!! ~ Love her smiles!!!

Matt, Abby, Austin & Caed on March 19th, 2008 at 5:46 am #

She is definitely a miracle and the Lord has brought her so far already…we’ll continue praying for her and for you and Josh.

Gloria & Red Jacobsen on March 19th, 2008 at 6:06 am #

Just looking at her 10 day picture,really shows us the power of prayer,the Lord Jesus is healing Ella day by Ella you are a fantastic reminder to us of God’s faithfullness and how important it is for all us to stay in daily prayer to Him. Maybe that’s why the only prayer Jesus ever taught was The “Our Father” in it is our reminder “give us this day our daily bread” Ella keeps me in daily prayer for her and others, and for blessing the efforts of yourselves and Dr. Kays and his staff ! Thank you Ella for reminding us of God’s awesome love! You are living testimony of the power of prayer!!

Post a comment

Name:  (required)
Email:  (required)