Posted (Tina) in All Posts on March-24-2008

I can’t believe that Ella is already 8 months old.

Tomorrow we have our appointment with Dr. Kays. We pray that Ella has gained weight (two weeks ago, she weighed in at 11lbs, 9 ounces). We never heard back about the oil to add to her food for calorie enhancement. We hope to follow-up on this and begin adding it over the next few weeks. We’re hoping that it does not cause any issues. If you remember, the MCT (medium chain triglyceride) oil in the Pregestimil formula caused her lots of grief. Also, any non-MCT oil might cause her lymphatic system to empty out more fluid via her thoracic duct. Since Ella is always fighting the fluid issues, we will simply want to monitor her closely.

In addition, we did not hear the results from her labs 2 weeks ago. We tried to follow-up and heard that her other electrolytes looked “good” but were told that the BUN (blood urea nitrogen) did not come across on the labs. This is our main gauge for dryness in Ella’s body. Since she is taking such a high dose of diuretics, our assumption is that Ella will need to have blood drawn again. We are not looking forward to that part!

Hopefully, Dr. Kays will be happy that we reduced her oxygen to 400mls. Maybe she will perform and give him a better number when he checks her saturations. As I type this, Ella is sound asleep with her saturation at 99 and her heart rate at 106. So, she is getting stronger. Praise God!

Ella had a pretty good day. She was real happy besides a couple of moments when things weren’t going her way or we tried to make her work (e.g. having her sit up). The other night, she started rolling from side to side in frustration. This is promising to see her do this activity on her own.

Today, her favorite activity seemed to be laying on her activity mat, grabbing the toys above her and rolling from side to side. She was happy and content. As I mentioned previously, we are excited for her first physical therapy appointment on Wednesday this week.

When Ella turned 6 months old, we were discharged from the NICU (first photo below). Although we had another hospital visit shortly thereafter, it is amazing to think that two months has passed (bottom photo below).

Each day we praise God for our baby girl. She is so special and so sweet. We just love her so much and although this parenting role is the toughest job, we are so blessed.

We couldn’t have imagined this journey. It is amazing to see how far God has carried us.

Thank you for your continued prayers. They mean so much.

2 Corinthians 1:3-4
Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God.

The Lizotte Family on March 24th, 2008 at 7:35 pm #

WOW!! Ella you are moving right along. Be good for Dr. Kays tomorrow. I will pray for the lab results to be fabulous, just like your mom and dad.

Jim and Char Jordan on March 24th, 2008 at 8:13 pm #

Great to see the obvious difference. You are doing great. LOL Jim and Aunt Char

Joel Snyder on March 24th, 2008 at 9:12 pm #

Ella, Happy Eight months and you are looking goodl. Say hello to Dr.Kays for me. I hope you have a good appointment and that your tests turn out good. I am taking Taco to the Vets tommorrow and will let you know how her eyes are doing. I will check on you then. Love,Grandpa!!!!!!!!!!!!!

Lesli on March 25th, 2008 at 4:13 am #

We were so happy to read of your trip to Orlando! How fun….Ella’s first road trip! We can’t wait until you can go north about 6 hours (or 12 if you go on a Friday night of Labor Day Weekend) and see us! We are praying for Ella every day and our kids check in on her several times every day! Even 2 year old Lilly needs to see Baby Ella. She has become a big part of their lives. They can’t wait to meet her in person! We will continue to pray for you to have wisdom as you care for her and endurance and rest as you go through all these sleep deprived nights. We will pray especially for your visit with Dr. Kays today.

Love, The Richards

Matt, Abby, Austin & Caed on March 25th, 2008 at 5:11 am #

It’s hard to believe that ya’ll took her home 2 months ago…it’s amazing how far God has brought her since He first created her. We are praying for continued progress, rest, peace, healing and joy in Ella’s life and for both of you. Also that neither one of you feels alone. God is being glorified through this and has a plan and a purpose for you that is His own. It’s hard to see that (since we also tend to have our own plans – there’s a line in a song that says “…and if you want to hear God laugh tell Him your plans.”) but it’s true. We love you three and are here for you.

Give unto the Lord the glory due unto His name; worship the Lord in the beauty of holiness.
Psalm 29:2

Tracy Schultz on March 25th, 2008 at 7:50 pm #

Wow, eight months! I can hardly believe it. She’s getting stronger every day. What a blessing you all are to us!
Take care.

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