Posted (Tina) in All Posts on March-27-2008

The day started with a visit from Nurse Michelle. It was nice to see her. We walked across the street for a coffee while Josh watched Ella for a bit. It was refreshing to have a mini escape.

Ella had a great day for feeds. She took the bottle for 4 of her feeds, totaling 105ccs (approximately 3.5 ounces). She took 45ccs at once on the first feed this morning! That is her second best. Last Saturday, she took 50ccs at once. That gives us such hope. All of this requires lots and lots of patience, but Ella is slowly making progress with her feeds.

Another bit of good news: we have gone two nights with the addition of corn oil and have not seen any significant changes. Yesterday, her stools were a bit looser but today was normal. So we are hoping that the only long term effect is weight gain!

Also, I did some of the PT exercises with her today. The first few times, she was more receptive. We focused on her head control and she did really well. As the day continued, she was less tolerant and started to cry hard if I made her work. Oh well, at least we had a couple of good sessions. Hopefully if we are persistent and do this each day, she will slowly get stronger and it won’t be quite so much work.

Ella had a great time in the bath this evening. I think her favorite part is afterward when she is all clean, warm and gets cuddled in her towel. She is so smiley.

We took Ella on a short walk this evening as the sun was setting. Although the walk was short, Ella seems to be getting better and better with tolerating walks. I like it when we can take her in the car or have her go on a short walk. It gets her out in the real world and just slowly gives her some exposure.

I read today about another CDH baby girl that had her repair surgery. Looking at the photos and reading the details made it all come back to me. It seems so distant, and yet it was just yesterday. I don’t know the family, but I lifted up their baby girl to the Lord and asked for His guidance and protection for her and them. If you think about it, please say a prayer for this family.

Psalm 23
The LORD is my shepherd, I shall not be in want.

He makes me lie down in green pastures,
he leads me beside quiet waters,

he restores my soul.
He guides me in paths of righteousness
for his name’s sake.

Even though I walk
through the valley of the shadow of death,
I will fear no evil,
for you are with me;
your rod and your staff,
they comfort me.

You prepare a table before me
in the presence of my enemies.
You anoint my head with oil;
my cup overflows.

Surely goodness and love will follow me
all the days of my life,
and I will dwell in the house of the LORD

Jim and Char Jordan on March 27th, 2008 at 8:19 pm #

Such personality. Such communication. It has been said that a picture is worth a thousand words. I think Ella says it all. LOL Aunt Char and Jim

The Laz Fam on March 27th, 2008 at 9:49 pm #

well that’s a jaunty little bow! glad to hear the eating went so well, and the exercises are off to a good start!
Blessings ~ KTJB

Janiss Robles (Philippines) on March 27th, 2008 at 10:24 pm #

A – You’re ADORABLE!

Sending you some Love,
Janiss and Family

Matt, Abby, Austin & Caed on March 28th, 2008 at 5:53 am #

More good news…I love it! We’re really happy that she’s doing so well and we pray that God continues to bless her with healing and strength. Those pictures are great!

Laura Marold on March 28th, 2008 at 8:31 am #

That is my favorite psalm. It always calms me. I’m so glad to see Ella looking so happy and (for her) healthy. It’s so great that things are moving forward for you both. You are such wonderful parents. God bless you, Laura M.

Joel Snyder on March 28th, 2008 at 8:36 am #

Ella, Ilove the pictures you look great. Keep up the steady progress with the feeding. I am hoping that you will continue the great start with your PT. I am saying a prayer for you and that new CDH baby and family your Mom found. Iwill check on you later and have a great day. Love,Grandpa!!!!!!!!!!!!!!!!

The Lizotte Family on March 28th, 2008 at 6:20 pm #

Good Job Ella!!! It looks like you’ve got Mom and Dad well trained. Keep on enjoying your new diet. So many new things to try!

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