Posted (Tina) in All Posts on August-4-2008

UPDATE – 8:00AM (MST) (by Josh):
Tina called Dr. Perry this morning (Ella’s pediatrician) because she had another rough night. Due to her continued fever, high heart rate, and overall behavior, he recommended that she take her to the ER to have her checked out. Hopefully some tests will give us more insight into what’s affecting our girl. It could be something as simple as a cold, or maybe something else. I’ll update once I know more.

While riding on light rail, listening to Charles Stanley this morning, God put this thought on my heart. Do the circumstances around us make God any less trustworthy? In ALL circumstances, we can fully trust in Him. Praise God!

UPDATE – 11:30AM (MST) (by Josh):
Tina just let me know that Ella’s being admitted to the hospital so they can watch her overnight. Not a ton of info yet, just doing all the tests…xray, echo, labs, etc in the ER before they move her to a room upstairs. One doctor said the chest x-ray looks hazy… and that maybe her lungs are wet, but they look ok otherwise…no collapsing or signs of aspiration. We’re waiting to see what Dr. Abman (her pulmonologist) thinks. White blood cell count looks ok, so it doesn’t look like infection. She’s also not running a fever right now. She’s currently on 700mls of O2 and saturating about 95%. Heart rate is around 150. We’ve also noticed that her urine output has decreased over the last day or so.

At this time we think it may just be the fluid issue Ella has always battled, but we’ll see.

Praying and trusting.

UPDATE – 11:00PM (MST) (by Tina):
Once all the tests were done this morning, we were stuck in the ER until 4:30pm. The Children’s Hospital had every bed filled to capacity, so we were waiting for someone to be discharged. They wanted to admit Ella to the hospital so that they could run more tests and monitor her overnight.

They moved us to the eighth floor. It is a private room complete with a flat screen TV, pull out bed, bathroom and view of the city and mountains. Along with the beautiful facility, all the employees have been amazing. We have never been to a Children’s Hospital and it makes such a HUGE difference when everyone is trained to take care of children. If we have to be in the hospital, we are glad to be here. It makes the experience not so bad.

This evening, Ella has stabilized on 1 liter of oxygen. Along with her fever that returned tonight, her heart rate is around 185, breaths per minute 85-100, and saturating 93-95. So far, all her tests are not pointing to anything obvious. Her white blood cell count was normal. Blood labs came back with everything in normal range, although her blood urea nitrogen (BUN) came back at 14. If you remember, a higher number means that she is more dry and Dr. Kays liked to see it 20 or higher. The last BUN was 18, when we first returned to Denver. So she is definitely more “wet”, even though she is still on a lot of diuretics.

They took a blood gas this evening and said that it was pretty good – – they expected it to be worse, but it seems her body is compensating. For all the medically minded people out there, here were the results:

PH – venous gas 7.45
PCO2 – Venous 47
PO2 – Venous 54
HCO3 – Venous 32
Total CO2 – Venous 33
Base Excess – Venous 7.0
O2 Saturation – Venous 87.3

The chest xray came back looking slightly hazy, but not real bad. It is tough for them to comment because they have no other chest xrays to compare. Her echocardiogram shows no pulmonary hypertension; this means her medicine is working and the altitude is not causing too much of an issue. The swab for viruses (they swipe boogies from her nose) came back negative. So far, no bacteria growth for the other blood tests.

Dr. Perry called and we discussed everything that happened today. He is such a great doctor – so nice. Tomorrow, Dr. Perry will be attending on rounds so we will get to see him in person. We are going to try and have some tests completed tomorrow through gastroenterology – – we want to figure out why she is retching so much and if that has played a role in her lungs getting too wet (could she be micro-aspirating)?

We expect to be here throughout tomorrow and possibly for another evening, depending on how Ella does throughout the night. Once we meet with all the doctors and they discuss the results of all the tests tomorrow morning, we will have a better idea.

Thanks for all the thoughts and prayers for the Bun. The support out there from all of you is so encouraging during times like these.

Laura Blackwell on August 4th, 2008 at 11:14 pm #

Yikes! Just came back to town and saw this! We will jump right back into where we were last August and pray for Ella that passionately!

Lesli on August 5th, 2008 at 4:22 am #

Praying for our sweet girl and her parents….I’m so thankful that you are finding Children’s Hospital to be a good place for Ella. We will keep praying and checking in throughout the day.
Love, The Richards

Rachel on August 5th, 2008 at 4:23 am #

Praying for baby Ella ..

Atlanta, GA

Roxie (Adrienne's friend) on August 5th, 2008 at 5:08 am #

Praying for you Little Ella and your Mommie and Daddy.

Dawn Franck on August 5th, 2008 at 6:02 am #

Oh Tina and Josh, my thoughts and prayers are with you guys. I hope they can figure out what is ailing the little bun so she can go back home healthy as soon as possible. Take care, Dawn

Steve and Joan Odell on August 5th, 2008 at 6:05 am #

Bless your hearts!! Prayers and thoughts are with the three of you and the medical staff – Children’s is an awesome place!!! Hugs – Steve and Joan

the Lizotte family on August 5th, 2008 at 6:06 am #

Praying for you.

Auntie Shannon on August 5th, 2008 at 6:11 am #

Extra prayers coming your way. She sure looks cute. I love her checking out her little monkey buddy. ig smooches to sweet Ella.


Auntie Shannon

Kelli Billman on August 5th, 2008 at 6:19 am #

Go Ella, we’re prayin, go Ella!

Fran on August 5th, 2008 at 6:49 am #

Everyone is praying for you Ella. And I see that your Monkey buddy is there to keep you company! Hugs Sweet Girl.

Matt, Abby, Austin & Caed on August 5th, 2008 at 6:55 am #

We’re praying for Ella (and her Mom & Dad too) and for wisdom and discernment for the Doctors.

As for God, his way is perfect; the word of the Lord is flawless. He is a shield for all who take refuge in him.
2 Samuel 22:31

Loren on August 5th, 2008 at 7:35 am #

We’re praying for you Ella.

The Lee Family on August 5th, 2008 at 7:37 am #

Praying for Baby Ella!!!

Laura Marold on August 5th, 2008 at 7:37 am #

Hoping and praying for an answer or protocol that gives Ella some relief from her symptoms. Be brave Tina and Josh. Love, Laura M.

The Laz Fam on August 5th, 2008 at 7:43 am #

Praise God for your faith and trust! You are doing great!

Eve Sheridan on August 5th, 2008 at 7:45 am #

Praying for Ella’s health and strength, and thinking of all three of you. Thanks for keeping us in the loop.

Joel Snyder on August 5th, 2008 at 7:45 am #

Ella,I just got home from work and read your Mom’s post from last night. The computer at work was down last night. Glad to hear that you are getting all the tests done. I am getting ready to call your Mom and get another update. I will chat later with you. Love,Grandpa!!!!!!!!!!!

Anne on August 5th, 2008 at 7:49 am #

You three are in our thoughts and prayers daily… regardless of whether you’re in the hospital or not! But what a cool hospital! Loved the photos… like you said, if you have to be in a hospital…this is a great one! Praying all comes out great and you’re all in your own beds tonight.

Jennifer Harris on August 5th, 2008 at 7:56 am #

Our thoughts and prayers are with Ella. Mom and Dad–please stay strong as the angels of mercy are watching over you. “PEACE BE STILL”!

Williamsburg on August 5th, 2008 at 8:05 am #

It is _the_ hardest, and yet most encouraging truth I know: that God is trustworthy in any and every circumstance because, as incredibly challenging as our circumstances sometimes are, they are not his main concern – our continued growth into looking more and more like Jesus is. That’s why we’re encouraged, even while we’re anxious and sad about Ella being hospitalized again, because we have all seen firsthand how He has grown you guys and glorified Himself to a degree beyond human comprehension throughout this year and last. We are, as always, with you in heart, soul and spirit, praying and worshiping and hoping and grieving and sticking close regardless. We love you. XXOXOXO

Eve Johnson on August 5th, 2008 at 8:48 am #

Praying for you three. May the great Physician continue to have His hand on you all.

Kristen on August 5th, 2008 at 9:08 am #

Children’s is a great place to be. . we have been there before. . . praise God you took her in. I love how you are so tuned into what Ella is trying to tell you. Asking for discernment from the physician team and comfort for you while you wait for more answers. xoxoxo

Rupa Rao on August 5th, 2008 at 9:14 am #

Praying for you Ella. Get well soon sweetheart!

The Dirirm Family on August 5th, 2008 at 9:34 am #

Thanks for keeping us updated. We are praying for wisdom and healing.
The Dirrim’s

Amber Riley on August 5th, 2008 at 11:08 am #

Praying for you baby Ella. Every time i look at your face i smile. You are a blessing!

LoriAnn & The Gang on August 5th, 2008 at 12:45 pm #

“Heavenly Father, please give Ella the needed strength and patience to get through this tough time. Please surround your children, Josh and Tina, with your love and hope. I ask that you put an Angel right by Baby Bun and that the whole family just feels your warmth and power. Your power is amazing, Lord, and this is just another testimonty to your will and work. I pray that Ella will be healed in Your time and that she goes home with her mommy and daddy soon. In these things I pray in the name of Jesus Christ. Amen”.
Well, if you gotta be a hospital, that one is the one to be in. My sister has been there with one of her girls before, and I received similar reviews. She is not OCD with pictures like y’all (that is for the comment about my calendar OCD – LOL), so I did not get to see how beautiful it really was. I have been to the Children’s hospital in Spokane a few times for my youngest one, and it is nice to have people more familiar with little people, instead of trying to get things to fit from a full-on adult to a baby or toddler. My prayers will continue, as others will too, from what I see.
God Bless. Thank you so much for keeping us updated. You know that their are so many of us out here who feel so helpless, so it is nice that you include us.

Rainey Family on August 5th, 2008 at 1:35 pm #

Lots of prayers coming your way! Get well soon little Ella!!!

Lisa Correia on August 5th, 2008 at 3:20 pm #

Hi Guys,
Let me know if there is anything I can do for you here in Denver? We’ll be praying for Little Ella!!! And you guys too!

kristin on August 5th, 2008 at 9:28 pm #

So much love and prayers of fast and true healing are arriving in multitudes. The trumpets have been sounded…actually they never stopped they just change their tune sometimes 🙂

God is faithful. He is loving and he is the Truth. He has not let you go. Ella, he continues to wrap his arms around you and your Mommy and Daddy. He is whispering secrets and healings in your ears and the ears of the doctors and nurses. All the children at the hospital are in his embrace.

Heal little one. Rest, repair and restore. We love you.


Schultz Family on August 5th, 2008 at 10:49 pm #

Oh, we will pray over here; clarity for Dr’s and peace for you. Get well soon, Ella! :0)

Jim and Char Jordan on August 6th, 2008 at 10:55 am #

You are the best Tina. It is so diffi cult and you seem to be able to keep you objectivity. That is amazing. You are the best.We will pray more diligently for Ella and her recovery.LOL Aunt Char and Jim

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