Posted (Tina) in All Posts on August-19-2008

Ella stayed on course today: 2 liters of oxygen in order to maintain her saturations and heart rate.

Our pulmonology appointment is this Thursday at 3pm.  We’re hoping to get some answers!  This waiting game is not fun.

We heard from Dr.Kays today via email.  Unfortunately, we had some technical difficulties and he was not able to see the upper GI images.  So, I re-sent everything this morning and hope to hear back from him tomorrow.  Based on the weather report, I hope that everyone in Gainesville stays safe – – there is a tropical storm that may become a hurricane in Florida right now.

We have been trying for several weeks to find a home health care agency that would provide private duty nursing.  Initially, our insurance company has approved 20 hours per week.  However, there is such a shortage of nurses, especially in Colorado.  We called eight different home health care agencies and none of them could help us.  One positive thing about being in the hospital: the case manager called the top rated home health care agency and now, they think they can staff a nurse.  The director of nursing is going to come by and meet me and Ella on Friday afternoon.  Please pray that will come through for us.  It would be so nice to have that type of support, even if it is simply short term.

Also, please join us in praying for the right family for our rental home.  It has been vacant since early June.  The traffic was better in July, yet this month has been slow.

It’s so hard to see Ella in a place where you know something is wrong and yet, there does not seem to be any urgency on behalf of the doctors. So, we’re just daily trying to trust in the Lord for his timing, purpose and plan to be revealed.

Thank you for all the support and prayers – it means a lot.

Michelle Herman Skeels on August 20th, 2008 at 3:12 am #

Glad to hear that Dr. Kays was able to reach out to you – but, boy, if it’s not one thing it is another! She sure does manage to look adorable every day – looks like she has quite the wardrobe – I hardly ever see the same outfit twice! Thinking of you all…. Michelle

Doug on August 20th, 2008 at 6:26 am #

Hey, party people!!

Just a note from ol’ FL. Tropical Storm Fay is just that-a tropical storm. She may swing around in head through Gainesville, but she shouldn’t do much damage, if any. It’s sitting over Melbourne this morning and the Guerras are chillin’ like Bob Dylan.

Much love!!

Kristen on August 20th, 2008 at 6:59 am #

Praying for the support you need in all areas! The waiting game really is a drag.

Steve and Joan Odell on August 20th, 2008 at 7:02 am #

Hang in there although I know it is touch at times – The Lord will hold you steady – Prayers continue – Steve and Joan

Joel Snyder on August 20th, 2008 at 8:15 am #

Ella, I just got home from work it was a busy night and I got to read the latest but not to answer. Sorry to hear that communications were bad but I am hoping and praying for progress today. Tina and Josh keep hanging in there nothing seems to come easy but I am praying for resolution on Ella, the house and the visiting nurse. Have a good day I will check on you three later. Love,Grandpa!!!!!!!!!!!!!!!!

The Laz Fam on August 20th, 2008 at 10:17 am #

Through all the frustration, and the difficult days, even as you are so honest about your struggle, your faith shines through. Keep trusting Him, keep praising Him! 🙂

Debbie Bennett on August 20th, 2008 at 1:08 pm #

I have just gotten a chance to sit down and catch-up on your situation. I am really disheartened to hear all of this. The Lord does have perfect timing, but it is still hard to sit back and wait. Please know that we are praying for your family. Dr. Kays was all over the place when we were there. As a matter fact, the day he left for vacation, he spent a total of 30 seconds in the room checking on John. He is in high demand, because he is great at what he does. I can totally understand your frustration in being patient. We love you guys so much, and hope all goes well. God Bless, Debbie

Matt, Abby, Austin & Caed on August 20th, 2008 at 6:13 pm #

I know this is really hard. We’re praying for Ella and for both of you. You’re never far from our hearts.

Post a comment

Name:  (required)
Email:  (required)