Posted (Tina) in All Posts on August-22-2008

Ella had a rough night. She woke up several times, sometimes just crying while other times coughing and retching. Normally, she is quiet for several hours and we do not hear a peep from her (sometimes her pulse oximeter alarms, but she doesn’t wake up).

In any case, it made for a rough night for all three of us. I’m so glad it is the weekend so we can all catch up on our zzz’s.

Ella coughed and retched so much this morning. Seriously, like 30 times by 9:30am; it was ridiculous. I sure hope that surgery and follow-up treatment helps.

Because of the retching and lack of sleep, we canceled the PT session this morning and rescheduled for Monday morning.

I am concerned about her fluid retention. I left a message for Dr. Perry so we could touch base, but he did not return my call.

Also, I called Dr. Partrick’s office to see about a surgical consult with Dr. Kays. His assistant did not call me back either! I’m just striking out.

It was a nice day in Denver and I needed to go to the bank to use the drive-up ATM and drop off one of Ella’s compound prescriptions. So, we got in the car and ventured out into the world for a little bit this afternoon. Man, the large portable oxygen tank sure runs out quick when she is on 2 liters.

Ella continued her talking today. I had to capture it by video, so we could share her new “duh, duh” with all of you!

Many of you have sent letters for Ella’s timecapsule which we will be sealing up in a couple of days. Thanks so much for taking the time and effort to send those letters to Ella. I know that she will be in awe some day when she reads them.

Ella normally naps for an hour or so and I wake her up around 8pm, so she can stay awake for a couple more hours. But I have tried countless times to wake her up, and she will not wake up!!! I even sat her up in her chair. She didn’t even have the energy to fuss or complain. She is fast asleep.

I’m hoping that she is just making up for those lost hours last night and doesn’t decide to wake up at 5am.

Josh is working late tonight, so its just me and the Bun putting on our pj’s and getting ready to ride into the weekend.

The Laz Fam on August 22nd, 2008 at 11:32 pm #

lol… that is so sweet! she sounds just like josh!

Laura Arneson on August 23rd, 2008 at 3:41 am #

I just love those baby noises, called all the boys to hear and see. Precious one, blessed are you!

Joel Snyder on August 23rd, 2008 at 5:29 am #

Ella, I am getting ready to go to work and this will be a busy week. I am glad to hear that you are talking and hope you get your rest and get ready for your surgery. I will check on you tonight and I hope you have a good weekend with Mom and Dad. Love,Grandpa!!!!!!!!!!!!!!!!

Vicki/CO on August 23rd, 2008 at 6:56 am #

Ohmigosh, how precious to watch Ella kicking, playing with her toy, and “talking”! It is just too cute! I am praying for the upcoming surgery, for the surgeon and his team and everyone involved in the surgery for wisdom and skill, for little Ella to have added strength for the surgery, for you, Josh and Tina, to have comfort and peace in your hearts as you watch her go through another procedure. But, we pray this surgery will only do good things for her and will stop this retching. God is so good, and He is right beside you all, and He will carry you through this,too. Thank you so much for continually sharing your story with us, pictures, and the video of Ella “talking”! I wonder what she’s saying…I’m sure she knows!! God bless you all!

Adrienne (Melissa's sister) on August 23rd, 2008 at 9:30 am #

Sienna loves the “bebeeeeee!” So soooo sweet! Us Saudi girls are going to try together sometime this week to get a picture together for Ella – maybe it might make it into the time capsule!

Tammy on August 23rd, 2008 at 7:44 pm #

Those were excellent duhs! I kept expecting Ella to roll over….she sure looks like she’s getting ready to start movin and shakin!
God Bless,

Jim and Char Jordan on August 23rd, 2008 at 8:43 pm #

Such music to my ears!! She does NOT sound as though she has any hearing loss. We just thrill to see and hear her as she is. We are praying that the surgeon will have a change of heart and think about communicating with Dr. Kays. Such a trooper family. That is the Lord’s way. Carry on and know we love and pray for you daily.

LoriAnn & The Gang on August 26th, 2008 at 11:39 am #

We were gone on a family emergency, so I missed a few days. AND I missed the closing of the capsule. We will send our stuff anyway, in the hopes that you can save it somehow.
I love the video of her voice. She is blessed with a lovely face, spirit AND voice. Yes, y’all are surely blessed. LoriAnn

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