Posted (Tina) in All Posts on January-15-2009

Ella was up all night last night. Literally, every 20 minutes I was running down the hall to her room. She was uncomfortable and not able to sleep. I tried everything and nothing seemed to work. Between yesterday waking up at 3:30am and last night not getting sleep at all, it is surprising that I was able to function today.

You can tell that Ella doesn’t feel that great. She was just fussy and cranky, all day. We’re not sure exactly what is going on but our guess is the normal culprit: fluid. We opted to give her 1/ 2 dose of Bumex today (total 1.5 mg in the past 24 hours). While assessing her behavior and numbers tonight, we think she might need the other 1/2 dose of Bumex. She is requiring 1.5 liters of oxygen and her heart rate is higher. These are classic symptoms of fluid overload.

Speaking of additional fluid, she has been so thirsty! Last night, when I would run to her bedside, she was coughing and sounded dry. I would offer the bottle and she would down a bunch of liquid and then retch. After a spell, she would roll over and try to sleep. Twenty minutes later, we repeated the exercise. So throughout the night, she took way more than she is supposed to by mouth. This is likely not helping the situation.

We are going to wait until she is weighed in the morning by the home nurse. Last week, she was 8.66 kilos. If she is within .1 kilos of last week, we may opt against the Bumex. If it is higher, it is confirmation of fluid retention and means we need to give the Bumex. We’ll see how she sleeps too. Praying that she will sleep since we are exhausted!

Part of the rough week or so is that I decided to quit my job. Tomorrow is my last day. It was not a good fit for me; I was stressed all the time and didn’t feel valued. As I was struggling to make it work, especially since I felt God led me to the job, I kept asking for guidance on what I was supposed to learn from this situation.

Then, I also remembered that maybe this was not so much about me learning something as it was simply the timing of the situation. There is no way that we would have moved back into our house nor hired Kelly to take care of Ella if I had not been offered this job. But it was a short lived situation. It is a bummer that it did not work out, and yet, I am interested to see what the next steps are in this journey. There is a reason that it all worked out this way. I will be looking for something else, but in the mean time, I’m looking forward to taking a break for the next week or so. I have not had a break in a long time. Heck, maybe I’ll just plan to sleep in for awhile!

So once again, lots of change for the West family. We’re looking to Him for guidance as we take the next steps. And we pray that He will heal Ella’s fragile body and restore her health.

The Laz Fam on January 15th, 2009 at 11:20 pm #

So sorry to hear about her — and your — rough night. We think of you often, and we will pray for you to know God’s will for Ella, and for you. We love you!

Laura Blackwell on January 15th, 2009 at 11:54 pm #

My heart is near to those up with children. Prayers for a more restful night.

Kathy in West Texas on January 16th, 2009 at 5:11 am #

I went through the same thing last January. I left a VERY GOOD JOB that I knew God had led me to in the first place 6 yrs ago, and went to another job that I felt like He was opening the door for me to go to. I think I just wanted to get out of where I was and wasn’t listening closely because I didn’t stay there very long. It just wasn’t a good fit, like you said about yours. Of course, now I have 2nd thoughts, and wonder if I should have ever left the 1st job in the first place. OH well.

Is Kelly still gonna be with you? Hope I’m not being too nosey, just wondering.

I’m keeping Ella in my prayers!

Marge (Indiana friend) on January 16th, 2009 at 6:46 am #

Continued prayers for healing for Ella, for strength, courage and wisdom for Tina and Josh. May you all know God’s fullest blessings.

Joan and Steve Odell on January 16th, 2009 at 10:02 am #

He leads us every moment and will continue to guide you on your journey for a position. Many blessings came to the West family because you followed his guidance. Blessings will continue and you will hear his voice. Prayers continue for all of you and that Ella will be able to rest. Lord Bless and hugs – Steve and Joan

Julie on January 16th, 2009 at 11:32 am #

I feel for you, Tina. I’ve been up a lot more the past few nights with my girl, too. But I did at least get a 4 hour stretch without wake-ups. You must be exhausted!

And on the job front, just because it was short-lived, doesn’t mean you were in the wrong place. Sometimes God leads us to a place for a time and then leads away again. It’s frustrating when we don’t know why, but we can also trust that he knows what he’s doing and has a reason.

Joel Snyder on January 16th, 2009 at 5:12 pm #

Ella, I am sorry to hear that your not feeling well. I hope that we can find the answers for you. Maybe the Bumex will help. Tina and Josh I am praying that things will smooth out for you and you can grt some rest. I will catch you later. Love,Grandpa!!!!

Dawn on January 16th, 2009 at 7:03 pm #

Oh Tina, I am in Seattle right now visiting my sister and I just had a few minutes to catch up on my West family. I am sure you made the right decision with your job and as you know when one door closes, another one always opens. One thing is for sure, if you are going to be spending allot of time at work and away from your family, it sure better be worth while and gratifying. I’m sure this must be the right decision for you and your family right now. Just know that I am thinking about you and your family and I hope Ella will be feeling better soon. Lots of Love, Dawn

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