Posted (Tina) in All Posts on January-21-2009

Ella got her monthly synagis shot today from the home nurse. She melted down real good and required about an hour of beauty sleep to recover.

Then later when the PT showed up, it took Ella a bit of time to warm up. I think she assumed that she was going to get poked again. Poor little girl. Once she got past her fear, she had a good time with the PT session. She did so well that she leaned over the boppy and did not require any hands to hold her in place – she was using her own balance!

Also, Ella decided that she was okay eating baby food today. She ate nearly a jar this afternoon. I’m not sure what convinced her that she liked it today and has hated the spoon near her mouth every other day, but we’ll take it!

We’re looking forward to our pulmonology appointment tomorrow with Dr. Lysinger and Dr. Abman. We want to discuss her current medicine regimen, the possibility of getting another upper GI (since she is retching so much) and the thoughts/next steps on having the procedure completed to open her superior vena cava in the heart catheter lab.

We’re praying for wisdom and guidance…that He will make His will evident to us.