Posted (Tina) in All Posts on January-21-2009

Ella got her monthly synagis shot today from the home nurse. She melted down real good and required about an hour of beauty sleep to recover.

Then later when the PT showed up, it took Ella a bit of time to warm up. I think she assumed that she was going to get poked again. Poor little girl. Once she got past her fear, she had a good time with the PT session. She did so well that she leaned over the boppy and did not require any hands to hold her in place – she was using her own balance!

Also, Ella decided that she was okay eating baby food today. She ate nearly a jar this afternoon. I’m not sure what convinced her that she liked it today and has hated the spoon near her mouth every other day, but we’ll take it!

We’re looking forward to our pulmonology appointment tomorrow with Dr. Lysinger and Dr. Abman. We want to discuss her current medicine regimen, the possibility of getting another upper GI (since she is retching so much) and the thoughts/next steps on having the procedure completed to open her superior vena cava in the heart catheter lab.

We’re praying for wisdom and guidance…that He will make His will evident to us.

Julie Kirk on January 21st, 2009 at 10:45 pm #

wonderful balance and eating!!!!! Joining you in prayer for decision making. lots and lots of love

Julie on January 21st, 2009 at 11:53 pm #

Go Ella! Go Ella!

The Laz Fam on January 22nd, 2009 at 12:29 am #

sweet…. and always so beautiful!
we love you!

Debbie Bennett on January 22nd, 2009 at 7:00 am #

Praying for guidance!

God Bless,
Debbie Bennett

Williamsburg on January 22nd, 2009 at 8:09 am #

Praying for the ultimate Physician to be clear with everyone involved in Ella’s care and on her team what the next best step to take is; and for all the rest and resources she and her parents need to be nourished day by day. Love you, dear ones. XOXOXO

Joel Snyder on January 22nd, 2009 at 11:55 am #

Ella You are always full of suprises for everyone. One minute you won’t do something and the next you will. I am so proud of your balancing act and great job with the groceries. I hope you have a great day. I am going to bring Maggie and Manny to see you on Saturday. Catch you later. Love,Grandpa!!!!!!!

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