Posted (Tina) in All Posts on April-21-2009

Ella slept well last night, but has been waking up early and needs consoling to fall back asleep. Today, it was from 6:30am – 7:30am. Her snotty nose does seem to be subsiding. I hope it is really on its way out. I was tricked last week into thinking the same thing and it came back stronger than ever!

She weighed in at 10.82 kilos this morning (23.8 lbs). Once again, still seeing the gradual increase of weight gain. That makes us happy!

Today was a day full of therapy appointments. First, we tried feeding. That did not last long. She was tolerant of sitting in her chair (sometimes just doing that sets her off), but once the feeding part of therapy started, she melted down. So, it was a fast session as you may be able to tell that she was losing her color!

Then, she had physical therapy this afternoon. Still working on the upper body strength in the torso and shoulders. Also, we’re trying to get her to bear weight on her arms when she is sitting up and laying on her tummy/side.

I’m looking forward to meeting with the director of String of Pearls tomorrow. It will be the first time for me to meet someone in person that has experienced a similar scenario concerning our unborn child. I’m interested to hear about their program and hope that we can become a source of support for other families in the future.

Also, looking forward to Ella’s SVC follow-up procedures on Thursday. I’m just so curious to see how her body is handling everything. From what we can tell, all her clinical signs look great. It seems like her body has been very happy since that procedure. Before it happened, we knew if the procedure was successful, it would be a good thing for her. But, I don’t think any of us, including her doctors, could have ever predicted how much of a great thing that this would be for her little, growing body.

We’re just enamored with her every day and blown away at how far she has come. Below is a photo of the Bun on this day one year ago.

A Baby is a Miracle

This little tiny baby
Was sent from God above
To fill our hearts with happiness
And touch our lives with love
He must have known
We’d give our all
And always do our best
To give our precious baby love
And be grateful and so blessed


Joel Snyder on April 22nd, 2009 at 5:18 am #

Ella, Hoping for no more snotty nose and steady progress with OT and PT. I am also very interested in Dr.Fagan’s update on your SVC. Tina I hope your meeting goes well and some of the answers to questions you must have will be answered. You folks all have a great week. Love,Grandpa!!!!!!!

Post a comment

Name:  (required)
Email:  (required)