Posted (Tina) in All Posts on May-7-2009

Hi, I’m Tina’s friend Terri and for the last 72 hours, I have had the honor of being part of the West family. We’ve had a great time visiting, and I’ve had an awesome time getting to know the Bun. This morning I asked Tina if I could write the blog this evening…a strange request, but one my best friend and her adoring husband allowed.

Let’s address the business of the day before I being the muse. Ella had a good OT session, which is evident by the condition of Tina’s shirt. Food was everywhere!

After nap time, the girls headed out for another shopping excursion. She does so well in the car and stores. Not a peep, cry, whine…I think she’s thrilled to be out and part of the world beyond the crib. We actually had a great day, so good in fact that she allowed me to rock her for a while before she went to bed. That was the high point of my trip!!

So many of us follow this story on a daily basis, and have been given an intimate glimpse into the hearts and lives of this dear family. The work that God has done is obvious to us all. However, I know I’ve been guilty of reading the blog, viewing the cute photos and thinking that things are good. Little did I know the work and drama that goes on inside of this house on a daily basis. I thought I knew, but in reality, I didn’t have a clue!

Tina has mentioned so many times the issue of congestion. Sure I think I understand congestion. I have nieces and nephews. They always have a runny nose or colds of sorts, so that’s what I relate to. Newsflash, that’s not the type of congestion this precious little one deals with. I can’t imagine having serious congestion all the time and being unable to clear my throat or blow my nose. Hearing her gag and wretch over and over broke my heart, and watching her mother calmly support her was nothing short of amazing. The one mantra I now know by heart is, “Swallow Bun,” which is literally said 100 times a day. What’s cool is that Ella understands and is beginning to try and manage the severe retching.

The other thing I learned this week is that Ella really does require attention at all time. A serious scare for me on Tues, was when mom walked away for less than 45 seconds and in that time Ella became upset, stopped breathing and was on her way to passing out. HOLY COW!! That’s when it hit me that they really don’t have the ability to allow others to assist with her care. My every instinct was to hold her, kiss her, make her laugh, but that just not possible.

As I prepare to pack my bags and head back to Dallas, I’m reminded how much this family still needs our loving prayer and support. Things are far from normal, or “ok”. It’s been such a blessing to witness God’s abundant love, visible and in the flesh in two people named Josh and Tina West. These guys are AMAZING! The love and patience I’ve observed over the past few days is similar to what I imagine from our Heavenly Father.

We are all blessed to be part of this journey.

Kathy in West Texas on May 8th, 2009 at 4:02 am #

WOW! Thanks for the “inside” perspective on what they are going through. Like you, I thought the same thing about “being congested”! Poor baby! I will be praying for all of them even more!

Dotty on May 8th, 2009 at 4:29 am #

as always our thoughts are with you, your hard work will pay off, Ella is getting stronger and stronger.
God Bless

Alicia Martin on May 8th, 2009 at 5:42 am #

Their strength is amazing and a wonderful testament to Him. God truly sent Ella to the right parents. We continue to pray for them.

The Williams on May 8th, 2009 at 6:31 am #

Thank you Terri, Thank you for your insight. I am glad you girls had a blessed time and even happier to hear/see that the Bun is getting outside. I love your insight and thoughts… it is hard, especially to a neighbor that would love to help give Tina and Josh a break now and then. Have a safe trip back to Dallas Terri. Love you guys!

Marge (A Friend in Indiana) on May 8th, 2009 at 7:03 am #

Well said Terri…….and I agree, the West family is truly amazing in what they do; it is inspiring to follow them on this journey.

Chambers Family on May 8th, 2009 at 8:46 am #

Terri — So glad that Tina has you! A better understanding is had by all…

Miss B on May 8th, 2009 at 9:48 am #

I just started following you story yesterday. I spent the entire day reading your journey! You both are an amazing couple! I can’t wait to share your “miracle story” with the patients at work. I work as a Labor Nurse in Arizona and all too often we have couples who come in to terminate a non viable pregnancy, luckily we are still able to change a few of their minds when they are there, and we send them home pregnant, to carry their sweet baby.

Your family will be in our prayers! Ella is absolutely beautiful, that smile is contagious!


sherry martinez on May 8th, 2009 at 1:57 pm #

wow u guys have been through a lot over the past few weeks. i have been unable to comment as cayden was in the hosptial being repaired for his third time. im so sorry about your son and nanny. however im glad u could get your license. im sure when the time is right u will take off with it. i think of your family daily. may u have peace and joy in the upcoming months u deserve it. hugs sherry and baby cayden

Joan and Steve Odell on May 8th, 2009 at 5:51 pm #

The West family is such a blessing and total reflection of God’s love and blessings – we receive the gifts of God through them – thank heaven for friends, families and those around us who continue to give their gifts in the way the Lord has led them. Hugs and prayers – Steve and Joan

Joel Snyder on May 10th, 2009 at 6:20 am #

Ella, Sorry your girlfriend had to leave town she is a very special person. Terri you are such a great friend and I am glad that you let everyone know what great parents and advocates of Ella go through on a daily basis. I am sorry that I didn’t get a chance to see you but we will one of these trips. I can tell by the pictures that Ella had a great time while you were here. Ella I will catch you later. Love,Grandpa!!!!!

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