Posted (jooosh) in All Posts on September-2-2007

Our baby girl is doing well this morning. Overall she had a stable night and her fluid output continues to decrease. Her total for the 24hour period (9/1/07) was 390, down from 440 yesterday. Her blood gases taken at 8am were so good, they were surprising (cO2 = 33, pO2 = 118)!

Since Ella has had a rough couple of days, it is good to see these numbers; they are a definite improvement over her previous levels. However while these numbers are good, her FiO2 (Fraction of Inspired Oxygen) is at 75. This is the amount of oxygen she receives via the ventilator. This amount was increased from 60 after her rough evening and morning early yesterday. Now that she’s doing better, I would expect Dr. Kays to ween this number down again (she was as low as 46 in the previous days). Being able to reduce this number will help her come off the ventilator, but she needs to maintain her stats to do so.

Ella still has a ways to go in reducing her fluids, but we’re thankful that she’s going in the right direction. While her main fluids are dropping (chylothorax condition improving), her head is still very swollen. This is more related to her superior vena cava condition. If her head does not reduce in size, they may consider performing another SVC procedure. Due to the risks of damaging her vein with the “balloon”, we hope that she does not need to have this done.

Please continue to pray for Ella’s overall fluid reduction (390 is still too high), reduction in her head swelling, and for her stats to remain stable enough so they can ween her off the ventilator.

Praise the Lord that we’re this far along in our journey, and Glory to God for the victories along the way! Thank you Jesus for our baby girl.

Joel Snyder on September 2nd, 2007 at 9:34 am #

Ella, You go “Gator Girl”. I am praying today for more steady progress in the fluid reduction process. I am also hoping that the SVC condition will improve. Taco,Manny,and the Dinos are all cheering for you and that band of Monkeys and that wild Bulldog. I hope your Mom and Dad have a good day also. Love!!!!! Grandpa

Cathie Firestone on September 2nd, 2007 at 9:53 am #

Go Ella Go!! Isn’t it WONDERFUL to have all numbers moving in the right direction?! We continue to pray for her fluid reduction, head swelling and being able to come off the vent SOON!! God is so good…in ALL things…we are praising Him with you today!

Grandma West on September 2nd, 2007 at 9:56 am #

SOOOOOOO glad to hear our baby girl is doing better she looks good to she is so cute .I cant beleave how much she looks like you Josh when you were born. Hope you two are having a more peacefull weekend Love to all Mom

Joan and Steve Odell on September 2nd, 2007 at 10:48 am #

Very happy that she is doing better. We continue general and specific prayers for all three of you. Hang tough little sweet Ella. Peaceful and healing rest for you and Momma and Daddy. Lord Bless and Hugs – Steve and Joan

Fran Jarrett on September 2nd, 2007 at 11:59 am #

Pastor asked me today how Baby Ella was doing and I filled her in on her progress and let her know that Ella is “one tough little girl”! May she keep progressing in the right direction and the head swelling and the fluid retention decrease.
Rest today and know that prayers are with you. Much love, Fran

Dawn Franck on September 2nd, 2007 at 5:12 pm #

I’m so glad to hear she is doing better. I’m thinking about you guys and praying that Ella keeps improving every day. Lots of love and hugs, Dawn

Char Snyder Jordan on September 2nd, 2007 at 8:59 pm #

Best Wishes to the BEST LITTLE WEST. We know you can do it Ella. Show them all how it is done. We love you and your parents. Steady now Ella. We are with you. Love, Aunt Char and Jim

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