Posted (Tina) in All Posts on September-6-2007

Ella is still holding on strong! I keep feeling like I need to pinch myself. It is so great to see how God is working.

Her afternoon blood gases were incredible. So when Dr. Kays checked on her before he left the hospital for the evening, he went to the ventilator and weened it further. Her oxygen is now at 40% – – this is the lowest amount ever for her! She will have another blood gas at 10pm and we will see what those turn out to be.

Ella’s fluid output looked like it might turn out to be close to the same amount as yesterday, 105. Dr. Kays wants to see that go to zero. If her fluid output is not less by 7am tomorrow morning, he plans to increase the octreotide medicine. She is at the maximum dosage that was used in the research studies, but since there are no known side effects and it might help, he wants to try increasing the dosage even further.

Nurse Janet is taking care of Ella tonight (one of the “Fab Four”), so we are resting well knowing that she is in good hands.

Thanks for the earnest prayers of many.

Hebrews 10:23
23 Let us hold unswervingly to the hope we profess, for he who promised is faithful.

Lisa Richmond on September 6th, 2007 at 6:22 pm #

WOW! Ella, you are one amazing girl! You are such a beautiful story and strength! Every day you touch my heart! I was busy all day today and could not check on you until this evening! The pictures are worth the wait! You would never know by the pictures of you and dad the challenges you face every day! You go Ella!
Our Lord is amazing!!!!….and your parents….WOW!!!

Keep up the great success!

The Rainey Family on September 6th, 2007 at 6:33 pm #

Wow! Ella looks amazing! We are so pleased that she is doing so well. Praise the Lord!!

Fran Jarrett on September 6th, 2007 at 6:33 pm #

You go Ella!
She is so alert in the photos and certainly aware of who Mommy and Daddy are!
The three of you continue to be in my prayers. Love, Fran

Lesli on September 6th, 2007 at 6:36 pm #

That picture is wonderful! I’m so glad you posted early tonight and I got to see it before I went to bed.

Love, Lesli

Brendan on September 6th, 2007 at 7:02 pm #

Ella looks great!!! She looks incredibly different than she did less than a week ago. The swelling in her head is way down, her eyes are open and alert. It looks like she’s moving around a bit more. All good things. I am continuing to pray for you three. Go God Go.

Welcome back Uga.

Lisa Correia on September 6th, 2007 at 7:10 pm #

What a doll!! That is the cutest picture ever with those big ol’ beautiful eyes looking right at me!! God bless beautiful Ella! You go you strong girl!
Love, The whole Correia Gang

tamara tessmer on September 6th, 2007 at 7:24 pm #

So stinkin’ cute. I love to end my day reading about how great Ella is doing. Thank you again for sharing with us. She is a miracle baby and the two of you are being used by God in such a big way. What an honor and privilege to be trusted with this. Your faith and trust in the Lord is awesome. Have a wonderful night.

Lori Vodnik on September 6th, 2007 at 7:37 pm #

Just when I don’t think that little button could get any cuter! What a precious angel. This little fighter makes me smile every time I log on. God Bless you all.

Joel Snyder on September 6th, 2007 at 8:16 pm #

Ella, You are incredeible little girl. Keep up the good stats and have a good nights sleep. I am praying for the fluid reduction to continue. Love, Grandpa

Becky on September 6th, 2007 at 8:18 pm #

Ella is beautiful, so alert.. Thank You God. Keep strong T&J, I want to send a monkey, where to???

Angie on September 6th, 2007 at 8:26 pm #

Aww! She looks so beautiful and bright eyed! I’m so excited everything is heading in the right direction. Loved the picture of Ella looking at her daddy this morning ~ AWESOME! 🙂 We’ll keep praying for the continued fluid reduction to get those chest tubes out. By the way I’m delighted to be a part of the “Fab Four”! Thanks & and as always it’s my pleasure. 🙂 I’ll check in with you guys tomorrow. Hugs & Kisses Ella! ~Nurse Angie

Eusey Family on September 6th, 2007 at 8:46 pm #

Go Ella, Go God! So great to talk to your mom today. We are praying for reduced swelling and a good report in the morning.
We love you,

The Laz Fam! on September 6th, 2007 at 11:04 pm #

Thank you for the wonderful pics! She’s so beautiful! We are all so, so glad she’s such a fighter. J & B pray for “Baby Ella” every evening at dinner, and J says Ella is such a pretty name! 🙂
Love you! TKJB

Liz Mueller on September 6th, 2007 at 11:20 pm #

She is so darling-beautiful eyes.She has improved so much.We keep her in our prayers.

Char Snyder Jordan on September 7th, 2007 at 12:21 am #

There is no way to express the feelings of gratitude and wonder that I have to see Ella’s progress and love that I feel towards her wonderful parents. It is so hard to choose to do what is right sometimes. You two, Josh and Tina, have brought so many people to the knowledge of Ella’s condition and have done it with class. We know it is hard. We feel and cry with emotion each step of the way. Carry On, Carry on. LOL Aunt Char and Jim

Lesli on September 7th, 2007 at 4:22 am #

um…you might want to email this picture to a few smarty-pants doctors who didn’t give God, Sweet Ella, and her parents much of a chance. Go God! Go Ella! We praise you, Lord, that you are still working miracles in our midst.


Daphne Hollowbush on September 7th, 2007 at 5:42 am #

How precious! I love those big brown eyes. God has used you to touch so many lives. Go Ella Go!!!
Daphne & Ron

Kristen on September 7th, 2007 at 6:43 am #

Beautiful girl! Precious daughter! Wonderful gift of the Lord! We celebrate her progress and pray for continued strength!

Loren on September 7th, 2007 at 6:47 am #

Ella Give that CDH good Left Right Left with those boxing gloves you’ve got on!
Go on girl knock’em out!!

Deb Carnsew on September 7th, 2007 at 7:44 am #

My goodness – I just love looking at those big beautiful eyes of hers! I agree with Lori; she is a little angel and no doubt one of His miracles. You all remain in my prayers and the daily good news shows that your prayers are all being answered. God Bless!

Felix on September 7th, 2007 at 7:59 am #

Love this post! Love the shot!

Loren on September 7th, 2007 at 9:15 am #

Little Miss Bright Eyes. Ella, You are so
beautiful. May the Lord watch over you and mom and dad. Bless You!

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