Posted (Tina) in All Posts on September-7-2007

Ella had a great night with Nurse Janet. Now, she is under Nurse Andrea’s care again today. We like it when the “Fab Four” are taking care of Ella!

Her blood gas this morning at 6am was fabulous (cO2=51, pO2=140). This is great news considering that the oxygen on the vent is turned down to 40%. Slow and steady steps each day. We will see what her blood gas is at 2pm.

Unfortunately, her fluid output increased from yesterday. It was 105 the day before and yesterday it increased slightly to 120. Although Dr. Kays has not given the order this morning, it is fully expected that he will increase the octreotide medicine soon.

Again, this is a bit of a mystery since Ella is the first CDH baby under Dr. Kays to have this much of a fluid issue since her repair surgery. Most babies have some fluid for a few days after the repair surgery and most resolves itself. If not, then typically the chest tubes resolve the issue. We are the first to try the octreotide under Dr. Kays, which has given us tremendous progress. Please pray that the fluid will go away with the increased amount of octreotide.

I think we need to revert back to Ella’s cousin’s chant. Using Claire’s words during ECMO days, maybe we need to just update the lyrics, “Go Ella! Go Ella! No fluid! No fluid!”

Thanks for all the thoughts and prayers. They are invaluable to us during this time.

Terri Trainer on September 7th, 2007 at 9:45 am #

She is such a beauty!! She’s going to be a heart breaker with those big beautiful eyes. Wait, what am I saying, daddy won’t let boys near her until she’s at least 25.
She looks great, and even her scar looks good. By the time she’s grown, she’ll hardly even see it.
We’re heading out of town in the morning and will have limited internet access. Know that you are always in our prayers. We love you – S&T

Joel Snyder on September 7th, 2007 at 10:07 am #

Ella, Have a good day and keep up the good stats. I am praying for the fluid reduction issue to resolve for you. I am going to the museum to work for a couple of hours. I will tell all the Dino’s how great you are doing. Love!!!!!Grandpa

Laura Blackwell on September 7th, 2007 at 10:24 am #

She looks so beautiful! You’re going to need a lot of wall space for these pictures when you get home. Continued prayers regarding fluid output and overall progress.

Auntie Shannon on September 7th, 2007 at 10:39 am #

Go Ella, Go Ella, No Fluid, No Fluid!


Joan Odell on September 7th, 2007 at 11:29 am #

Awesome news – as you said – slow and steady – Ella, you are so beautiful and precious. Hang in there and continue healing. No Fluid, No Fluid, Go Ella GO! Hugs – Steve and Joan

Adrienne (Melissa's sister!) on September 7th, 2007 at 12:47 pm #

My brother has a scar from when he was an infant and used to impress the girls telling them it was a *shark bite*, so maybe she can think up a really good story to go with hers! : )

Go Ella! GO! She looks so alert and beautiful!

Fran Jarrett on September 7th, 2007 at 1:11 pm #

The lyrics to Claire’s chant definitely need to be changed with a little “fluid be gone” added!
Ella gets more precious every day and I thank you for sharing her.
Go Ella, GO! And thanks to the Fab Four and Dr. Kays!

Loren on September 7th, 2007 at 4:52 pm #

Oh Ella, you are a powerpuff girl. I’m going to name you blossom. You’ve blossomed into a beautiful girl. May the Lord bless you and mom and dad.

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