Posted (Tina) in All Posts on September-24-2007

Ella had a successful trip down to radiology. The CT scan went well; they were able to transport her and do the scan without requiring any sedation.

Tonight when we came to see Ella, they had made one other change during the day. At noon, she had a blood gas of cO2=79, pO2=88, with her pH level down. Her carbon dioxide was definitely too high, so Dr. Kays bumped up the ventilator to 50 assisted breaths per minute.

Then, her next blood gas was at 4pm. It improved quite a bit, cO2=65, pO2=92, with a better pH level. While we are sitting here at her bedside, she had another blood gas at 11:30pm, cO2=64, pO2=116, with a good pH level. Much, much better.

Dr. Kays decided to hold off on replacing the left chest tube yesterday and today, until he got the results of the CT scan. Fortunately, the CT scan gave him the information that he needed.

Her right lung looked good and there was just a slight amount of fluid retention in the chest cavity. However, the left side of her chest has a tremendous amount of fluid, confirming Ella’s difficulty in progressing forward.

Dr. Kays is still trying to decide the best way to treat Ella’s condition. We know that it involves Ella having surgery this Wednesday, but we do not know how extensive. Some of it may have to be decided once he gets the camera in her chest to see.

Fortunately, Ella has been doing better. If you remember 2 weeks ago when Dr. Kays removed the left chest tube, she took several steps back in her progression. Now, it is almost as if her left tube is out since it hasn’t drained anything for days, and yet her blood gases and saturations look better. And as we have experienced, she seems comfortable and in a pleasant mood when we visit her. So her toleration of the fluid in her chest cavity has improved significantly.

We are looking forward to speaking to Dr. Kays tomorrow to hear about his plan for Wednesday.

Please keep praying for Ella and her surgery this week- – that it will go well, be on the less invasive side, and ultimately resolve the fluid issue.

We trust that the Lord will provide wisdom to Dr. Kays. We are taking comfort that Ella is in the hands of the Almighty God.

Laura Blackwell on September 24th, 2007 at 9:36 pm #

Oh Miss Ella, Rest well. You are in my prayers. I will have my Wed. Bible Study group praying for you.

Gloria & Red Jacobsen on September 24th, 2007 at 10:26 pm #

I’ve been praying for little everrrry day and I can see that the Lord is listening to all our prayers for her full return to health. Extra, extra prayers for Wednesday. Gloria

Mike Costas on September 25th, 2007 at 2:08 am #

You are so loved.
The Lord woke me this morning with you on my mind. I have been praying for you.
I have no idea what the Lord has in store for you, but I know He cares and will bring you through in a way that He will be glorified.
Your Mom and Dad have suffered with you and love you so much.
You are God’s special gift.

Eusey Family on September 25th, 2007 at 3:33 am #

Praying for Sweet Ella tonight. So glad she is doing a bit better. We pray for Dr. Kay’s wisdom and for a some comfort to mom and dad.
love you guys

Joan Odell on September 25th, 2007 at 6:26 am #

Oh Miss Ella – you are so precious!! Our thoughts and prayers are always with you —- I look at her beginning pictures and the one above and again see the beautiful miracle our Lord has provided. One day at a time – prayers and love – STeve and Joan

Jessica Morgan on September 25th, 2007 at 6:28 am #

I found your site through Tracy, my husband and I brought home our CDH baby girl, Arissa, from Shands back in April. I was reading her story and remembering the long days and nights of waiting for the smallest of signs that she would be alright. You family is in our prayers. As you know Dr. Kays is amazing and the staff is incredible, I prayed for weeks as to where to deliver our little girl and at one point after our consult my husband and I looked at each other and we just knew it needed to be Shands. Arissa turned 7 months on the 21st 🙂 Little Ella will be in our prayers.

Rhonda Ware on September 25th, 2007 at 7:42 am #

Hello I am a co-worker of Christie Mitchell (sister of Keith Mitchell). Tracey was sharing your families story…so we are keeping your family in our thoughts and prayers and we ask that the Lord keep His Mighty and Powerful hands all over Ms. Ella’s body and she will continue to grow and be the beautiful child of God that she was created to be…

Joel Snyder on September 25th, 2007 at 7:43 am #

Ella, I am hoping that we will get more good news from your CT scan and aid Dr. Kays in the fluid problem. I will be watching later today. Have a good day and keep taking baby steps. I Love You, Grandpa!!!!!

Char Snyder Jordan on September 25th, 2007 at 9:53 am #

It seems that Ella has an unsolvd mystery. Weprray that Dr. Kays will gain inspiration and knowledge to help this baby overcome her obstacles. We are with you and Ella continally. All our love, Aunt Char and Jim

Eusey Family on September 25th, 2007 at 11:38 am #

We are all praying very hard for all of you.

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