Nov
16
    
Posted (jooosh) in All Posts on November-16-2007


Ella did well today. She was absolutely wiped out though when we went to see her tonight. Between physical therapy, occupational therapy, and having a bath, our girl had a full day.

She also had a bit of drama last night as well. The Bun tends to sweat like her daddy. This doesn’t work so well with some of the bandage dressings. One important dressing is over her picc line.

When the nurse went to give her a bath last night, she looked down and her picc line was out of her arm. Not a good thing when you don’t expect it. Fortunately, it looked like it came out cleanly and there was no bleeding. It was scheduled to come out in the next few days anyways, we just didn’t expect it to come out on its own.

With the picc line out, they DC’d her fentynal, and are giving her very small doses of morphine through an IV in her foot to help with the weaning process. This is nice because she’s now down to just one pump. Pretty amazing if you think about it because at one point she had as many as 13!

We got to hang out with Tracy and her boys (Jacob & Jereme) tonight. We had dinner at Texas Roadhouse and then went to the hospital to see Ella. It was so sweet to see Tracy with our girl. I’m so glad we had the opportunity to meet her when we were first at the hospital. She’s been such a blessing to us and a source of strength as well.

We’re excited for the weekend so we can spend more time with Ella. We also hope to see Dr. Kays soon so we can talk about the next steps.

Thank you for the continued prayers for Ella, and the other NICU babies, Par and Jonathan.

God Bless



Roxie (Adrienne's friend) on November 16th, 2007 at 11:48 pm #

Delighted to hear that Ella has had lots of hands on today and tolerated it well. She is so on the road to wellness. It’s hard to believe that we could love our children anymore than you do right now but it really does get even better!! She looks like a little lamb sleeping…so sweet!
Glad to see Mom back with you two.
Love to you three, Roxie

Brendan on November 17th, 2007 at 3:42 am #

I’m so glad to see Ella doing so well. Praise the Lord, for He is Good.

Been praying for y’all. God bless you.

Joel Snyder on November 17th, 2007 at 6:38 am #

Ella, I am glad to hear that you had a good and busy day. I really enjoyed dinner and a visit with your Mom. I am surprised that she survived the visit with Taco and Manny they were thrilled to see her. Have a good day today and I will be praying for baby steps forward for you Par and Jonathan.I will check on you later. Love, Grandpa!!!!!!!!!!!!!

Kristen on November 17th, 2007 at 6:50 am #

Oh I am glad the Pic means the Picc line and not “No more pictures” I simply love to see the Bun! 😉 She is a miracle and I love to see her growing. Blessings to her as she weans off the meds!

Char Snyder Jordan on November 17th, 2007 at 8:59 am #

Golly, things are moving fast. Ella is taking things in stride and that is great. Nice to see Tracy. Now we have a face to put on the name. Thanks so much for the great pictures and all the information. I had to go and look up information on CDH again just to remind myself about the order and procedures that often happen. You three are so brave. Keep up the good work little family. We love you. LOL Aunt Char and Jim

Mary Lou Brantley on November 17th, 2007 at 11:09 am #

Josh & Tina,

It was great seeing you on the 6th!!

We are so happy for the progress Ella has made since then. The pictures are wonderful!! I really liked the bath tub picture. She is so so cute and precious in all of the pictures. She sure knows her Mommy and Daddy. As always, our thoughts and prayers
are with you.
Love and prayers,

Johnny and Mary Lou

Jeff Jacobson on November 17th, 2007 at 7:45 pm #

Thinking of you all. Have a wonderful Thanksgiving.

Steven and Terri Trainer on November 17th, 2007 at 9:27 pm #

Wow, talk about pretty in pink! That’s our girl! Thinking and praying for you daily. What a memorable Thanksgiving this will be! Hugs and love – T

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