Posted (jooosh) in All Posts on November-1-2007

One hundred and one days! Ella has been tracking so well these days and looking cute as ever too!

We spoke to Dr. Kays this afternoon about our girl. He’s please with her progress and said that she would be stepping down to the regular oxygen cannulas tomorrow. Yay! No more CPAP, just a controlled flow of oxygen.

Some more good news…Ella has not spit up at all since we last posted! This is a very good sign in that she’s keeping her food down and it’s going through her body properly.

There’s still another (very large) related hurdle though, and that’s bottle feeding itself. Ella has never had food (i.e. breast milk, formula) given orally.

CDH babies typically have issues related to this and the fact that our girl has gone on so long without this experience only increases the likelihood that the problem will be severe.

We’re not quite at this step yet but we expect it to be a challenging once were there.

On another note of praise, Phillip Andrew was born today! This is the boy of Liz and Rusty, the couple from Birmingham AL, who we met here in Gainesville.

We have been praying for God’s timing in the situation because you see, Dr. Kays has been out of town for the last week! When we went out to dinner with our friends the other night, we didn’t want to alert them to this fact, causing more stress for Liz and Rusty, so we didn’t say a word.

Instead, we prayed and trusted that the Lord’s perfect timing would play out in their lives. Dr. Kays was back in town last night, and they delivered this afternoon. PRAISE GOD FOR HIS SOVEREIGNTY!!

Philip Andrew is stable and doing well, and so is the rest of the family.

Please join us in prayer for Phillip Andrew and his entire family. Pray that Rusty and Liz will continue to look to our Lord for peace, and that their boy will remain stable and grow strong.

Please also pray for our baby girl and her big step tomorrow coming off CPAP.

Praising our Lord for where we are, and for the road ahead.

God Bless

Kara on November 1st, 2007 at 3:47 pm #

Oh, I’m so excited to see more of her face! Yeah, this is going to be so cool! Can’t wait for tomorrow’s pictures. Love you all.

Loren L. on November 1st, 2007 at 4:03 pm #

OH!!! I just love hearing these news! Somehow I know that Ella is going to take to the bottle like a natural. I can tell these things :). The pictures today and beautiful. We’ll pray for Phillip as he starts his journey in this world.
God Bless, XOXO

Where’s my tissue….

Heidi Anderson on November 1st, 2007 at 4:18 pm #

We will join you in prayer for your friends… and also for Ella coming off of CPAP tomorrow! She is so adorable and it is so great to see so many pictures! I check your blog often and pray as soon as I click on to your blog.

I met some friends of yours a few weeks back. Tim & Kari from Biola. Such a small world!

The Brittain Family on November 1st, 2007 at 4:19 pm #

Wow, this is really great news and a big step getting off of CPAP tomorrow! And getting to the place of even thinking about feeding issues is huge. One step at a time. Guess it’s always easier to expect the worst, but we have a lot of hope that she’ll make good progress once she tries feeding. We’ve had some feeding hurdles in our family here–some of them severe–but we got through them thanks to God’s provision. Make sure YOU get plenty of rest in preparation for facing that next hurdle. Sleep makes such a difference in facing challenges with creativity and perseverance and laughter goes a long ways, too! Anyways, we keep praying and praising our Lord, too, for many, MANY answered prayers! Little Phillip will be in our prayers as well. It’s nice that Ella’s there to show him the ropes!

Char Snyder Jordan on November 1st, 2007 at 4:22 pm #

One more giant step forward for Ella girl. We will pray for an uneventful day tomorrow as Ella breathe-day begins. We are praying for you and the new baby boy as he and his parents begin the long hard trek. LOL Char and Jim

Kathy Lee on November 1st, 2007 at 4:35 pm #

As I type my three year-old Ellie is in the background “playing” the piano and singing, “My God is so Big, so strong and so mighty. There’s nothing my God cannot do!” We trust in our big God to continue healing your precious miracle and to heal her new friend Phillip Andrew too! Thank you for the updates, they are a highlight of our day!

The Lees

Frank & Janice on November 1st, 2007 at 7:40 pm #

Hi you three.
Wow, Things seem to be getting a bit better day by day. Even though there are each day a new set of major hurdles for little Ella We know that Ella will jump those hurdles,have not been on the e-mail for a while. My lap top has been acting up. Actually I am having to redo this as well. We know your faith and ours will bind with all your well wishers to help along the way. We think of you often, We cant begin to know what your stress level must be. We have been in touch and have had updates on Mary and Jack. Cliff has e-mailed to say they are okay and Jacks eyes are doing better. Frank chatted also with Diane at first, as we had seen the fires on the news here. We could not contact Mary Alice. So we had called Diane. It never rains but it pours! We know that you all will have a better 2008. We are glad that all is okay in California for mum and Jack and we know that all will be well with the three of you. Wish we could be there to give you all a big hug. Cant wait to see you all here soon! . Love to all of you
Janice & Frank.xxxxxxxxxxx

Angie on November 1st, 2007 at 8:31 pm #

Go Ella! You are such a big girl. Stay strong for tomorrow! Go Ella..Go Ella..No CPAP…No CPAP! Love and Prayers! ~Nurse Angie

Felix on November 1st, 2007 at 8:59 pm #

Woohoo! Wonderful news!

Tammy on November 1st, 2007 at 9:45 pm #

It was nice to see daddy and Ella having some sleepy time together! The NO CPAP “chant” is music to everyone’s ears!
Our prayers go out to sweet Phillip Andrew and his family tonight.
May the Lord bless each sweet baby,and continue to meet the needs of each family as they wait upon the Lord for his healing and tender loving care!

Joel Snyder on November 1st, 2007 at 10:14 pm #

Ella, Wonderful to hear that you are making those baby steps to breathing on your own. I am praying for you to achieve your goals on the breathing and feeding fronts. Taco,Manny,and I are saying a special prayer for your new friend Phillip Andrew and his family. We will check on you and your Mom and Dad tommorrow. Love, Grandpa!!!!!!

Roxie (Adrienne's friend) on November 2nd, 2007 at 4:02 am #

Way to go Ella Girl!!! You are lookin great! I’ll bet those nurses have some tricks up thier sleeves to help Ella learn to suck and smack when it is time. Praising God Our Father for all He is doing in your lives… still praying for that little…big liver to do the work God meant for it to do and reduce in size. Enjoy her Mommie and Daddy. Bask in the warm love of your baby girl. She is absolutely adorable. Love and Prayers for you three, Roxie

Stacey Haygood on November 2nd, 2007 at 5:40 am #

You are so strong and beautiful baby girl. God bless you. XOXOXOX

Joan and Steve Odell on November 2nd, 2007 at 7:08 am #

Thanks be to God for more steps forward — hope your project reached a conclusion you were satisfied with Josh – prayers for you and Tina continue as they do for Ella. We are thanking God for little Phillip and praying for His love and guidance for this family as they take their journey. Lord Bless – Steve and Joan

Laura Marold on November 2nd, 2007 at 8:10 am #

Hi There! I am still praying for MORE even though there is good news on every front for Ella!! Keep going Ella!! The picture of you, Josh, snoozing with Ella is so funny. I’m picturing in my mind seeing both of you watching television together when she is out of the hospital and falling asleep together on some more comfortable looking furniture. But all things in God’s good time!! I know Ella will face more hurdles. The many, many hurdles she has allready gone over and how much diffficulty she has faced, along with her parents, is a source of inspiration for me as well as others, I’m sure. I pray for good news for little Phillip. Love, Laura M.

Leticia Plummer on November 2nd, 2007 at 11:10 am #

Through all of this I have been amazed at the personal fortitude that you both have. Your courage has been an inspiration. I know that baby Ella has the perfect parents.

Fran Jarrett on November 2nd, 2007 at 12:19 pm #

All the pictures you post are so beautiful! I sit here and look at them over and over as I am sure many do the same.
Ella, it is so wonderful to read how well you are doing. You and your Mom and Dad are an inspiration to many.

Liz Rich on November 2nd, 2007 at 3:43 pm #

We are so excited for Ella’s progress. Rusty and I can’t wait for her to meet Par. We can’t thank you enough for your prayers for God’s timing in Dr. Kays’ absence–thank you. Liz, Rusty & Par

Angela and Ashton on November 2nd, 2007 at 5:58 pm #

Hi! We love the Halloween Hat! We thought we’d log on and see the first Halloween 🙂
Hope everything continues to go well! Miss you!
Angela and Ashton

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