Posted (The West's) in All Posts on November-4-2007

Ella is doing better today. We can just feel it overall compared to yesterday. As much as she doesn’t like the CPAP headgear (we don’t either), it’s doing her good and providing the support she needs.

Our girl surprised us with another milestone today…she is sucking on a binky. This is something that we have tried many times in the past, but she has never taken to it. It usually has made her gag, but not today. Ella gets most of the credit in this success, but some if it has to go to Nurse Kelly who has such a magic touch =). We’re hoping that it’s a good sign of her taking to a bottle in the future.

We’re beginning to realize that Ella is not as fragile as she has been in the past. Many times early on, stimulation could send Ella into a bad downward spiral. Now that she is older and is overall in a better place, we are looking forward to being more “hands on” with her.

We both have spent a good amount of time holding her today. Something that we need to get better at is our confidence in handling our girl. We had been trained earlier to minimize our interaction with her, but now it is getting to a place where we need to interact more. It is hard to “undo” the training, but hope to gain more confidence with each passing day.

We will see how Ella progresses this week. Hopefully it won’t be too long until she has a chance to try breathing without CPAP.

Par, Ella’s roommate, is making good forward progress and has been able to avoid ECMO so far – – Praise God!

Your continued prayers for Ella and company are so appreciated.

Thanks to all of you for the love and support during this extended journey. We praise God for bringing us here and for blessing us through all these circumstances.

Lisa T on November 4th, 2007 at 5:53 pm #

That binky looks good, Ella!! And don’t worry, even in your headgear you still look cute as a button.

Carl and Cathie Firestone on November 4th, 2007 at 5:58 pm #

Taking a binky is such a good sign!! Go Ella Go!! Enjoy the hands on stuff…and all the holding time!! We are praying for a quick progression to NICU 2…all in God’s perfect timing! Love to you all!

Fran Jarrett on November 4th, 2007 at 6:07 pm #

Ella you do look adorable as usual Sweetie! Your little eyes are just so expressive and seem to say so much. Tell Mom and Dad not to worry, they will do just fine with you…they are naturals and it will not take them long to build up their confidence!
Blessings to you and all your little friends Ella. Wonderful to hear that Par is progressing and avoiding ECMO.

Ani A on November 4th, 2007 at 6:07 pm #

Look how cute you are little Ms Ella…and thanks Nurse Kelly for being you.

Kristen on November 4th, 2007 at 6:16 pm #

Our third girl loved her “gum drop” bikny- that same brand. Such a sweet picture to see those big eye and the binky. Ella you are a dream.

Kara Snyder on November 4th, 2007 at 6:25 pm #

Your hesitation with Ella reminds me of when I brought Kailee home for the first time. I was so afraid I would break her or drop her that I refused to bathe her for the first two weeks. Luckily Rob had gotten plenty of training with Marc and did a great job . I think I was scared the whole first year I had her. And she was healthy. I’m so glad you get to learn with the nurses help. It’s nice to have someone around that knows what they are doing to teach you.

Mary Lou Brantley on November 4th, 2007 at 6:56 pm #

Josh & Tina,
Ella looks absolutely adorable! The binky is sure a good sign that she will take to the bottle. That is Jordan’s favorite binky also. We are so excited and looking forward to our visit on Tuesday to see Dr. Kays and especially to see Ella and both of you!
Take care and we will see you soon.
Love & prayers, Mary Lou

Joel Snyder on November 4th, 2007 at 8:05 pm #

Ella, You are looking terrific with that binky and your headgear. I am glad to hear that Par is doing O.K.I will be praying that both of you keep up the baby steps of progress. I will check on you tommorrow. Love, Grandpa!!!!!!

monika on November 4th, 2007 at 8:35 pm #

ella sometimes we all wish we had our binky. Sleep tight with sweet dreams little bright eyes. God bless and rest all of you there. Love and prayers surround you. Xoxoxo

Eusey Family on November 4th, 2007 at 9:34 pm #

Her eyes are beautiful. Sweet dreams everyone.

Love and prayers from the gang in Newport

Julie Kirk -Saudi Arabia on November 5th, 2007 at 1:59 am #

her color is wonderful and her little eyes are so clear.

rachel on November 5th, 2007 at 6:06 am #

She is looking so good!!! Still praying for Atlanta, GA

Rachel & Ava on November 5th, 2007 at 8:21 am #

that happens alot, having to try several times to go off the ventilator, so don’t get discouraged. she looks amazing and WOW on the binky, that’s a really wonderful step, it’s huge for a baby that never got to start sucking right away to take to it this quickly, that’s a really good sign. thank you again for the daily updates, it brightens my day to get to check and see how she is doing, it’s almost been a healing experience for me, i still have my days where i just start to cry bc of everything my Ava went through, and she is perfect and healthy now

Roxie (Adrienne's friend) on November 5th, 2007 at 9:16 am #

oh my!!! Ella Bun!!! You look wonderful. Color is good and eyes are bright! You are the Big Sister in your dorm and setting a wonderful for the rest of your roomies. You Go Little Girl! That binky is adorable and such an encouraging step. Love and prayers for you all, Roxie

Char Snyder Jordan on November 5th, 2007 at 9:47 am #

This morning is foggy and cold here in California. It reminds me of the trip home from Mexico with your cousin Marc. He was 3 pounds and a few ounces. I was scared to hold him too. But this will pass with practice and in no time you two will be expert baby handlers. She will grow too and that will help. Rob Snyder was a great “Binky boy” Grandma Snyder used to stash them in the linnen closet so when one was lost another could be found. Josh and Tina, hang in there. She is making history. We are all there for you. We adore you. LOL Aunt Char and Jim

Char Snyder Jordan on November 5th, 2007 at 9:49 am #

Don’t be too awful concerned about her learning to suck. Marc had no sucking reflex when we brought him home. It just took a little patience and time and a big Nuk nipple. It looks like she will do just fine. LOL Aunt Char

Angie on November 5th, 2007 at 1:40 pm #

Love the pictures! They are too cute! Good job sucking on your binky Ella. 🙂 Keep up the good work. See you soon. Hugs & Kisses. ~Nurse Angie

Deborah Kittel on November 5th, 2007 at 1:41 pm #

Keep your eyes to the skies, Messiah will come soon, and His love for your baby Ella is far beyond imagination! We will pray for you and her, our baby is 23 weeks with .7 LHR and liver in chest cavity, and we went to San Fransisco last week and are in Oregon, both places have also heard a lot about termination, but this child is in the Creator’s hands! Don’t give up hope, He is your hope!

Your friends at Dr Richard Wallace's office on November 5th, 2007 at 1:45 pm #

Dear Baby Ella,
You are such a beautiful baby girl!!! We know with your mommy and daddy there with you doing everything humanly possible along with the doctors and nurses AND all of the us out there sending their hopes and prayers for you, you will be strong and healthy and able to come back to your Colorado home. We will be anxious to see you in person, but until then, we will keep checking your special website to get the updates on your progress!!!
all our best!!!
Dr Wallace and STAFF

Joan and Steve Odell on November 5th, 2007 at 2:53 pm #

Dearest Ella – looks like you are practicing to be out in the snow with your little blue cap and warm snuggly ‘blankie’. You are sure showing everyone how strong you are – we are so glad you have taken to the pacifier so soon you can start taking a bottle. Hello to Master Par and his family – isn’t it great to have a new friend! Momma and Daddy – relax and enjoy having her in your arms — it will come naturally before you know it. Prayers and hugs for all – Steve and Joan

Anne and Ron Fenske on November 5th, 2007 at 5:07 pm #

Greetings from Sophia’s house. Looks like you will be in fine form for spaghetti on July 4th, 2008 along with the fireworks in Palmer Lake. Keep fighting.

Chambers Family on November 5th, 2007 at 7:09 pm #

Yeah Binky! She has to get ready for the suck,swallow,breath. Who knew there were so many things to learn as a tiny little person. Go Ella. You will love the binky!

You look WONDERFUL in your Mommy’s arms.

Loren L. on November 5th, 2007 at 7:47 pm #

OOOHHH the suspense I killing me!!!!

Liz Rich on November 5th, 2007 at 9:07 pm #

Ella-you look adorable with your binky! We are praying for you constantly–and now specifically for graduation from the CPAP. May God bless you and give you a restful nights’ sleep.

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