Posted (Tina) in All Posts on November-7-2007

Today was uneventful for Ella which is good.

Her CPAP remains at a pressure of 5 and at 35% oxygen.

We have not talked to Dr. Kays in several days so we are not sure what the plan is for how long Ella will remain on CPAP. Our intuition is that she needs a bit longer. When she is asleep, her saturations are 100 and stats look great. When she is awake and alert, she seems like she works a bit harder to breathe and her saturations are mid-90s. To us, this is a sign that she needs more time to gain strength.

She was awake a lot of the day and is still taking to her binky. She has spit up once today which is not bad and means that she is still tolerating the meds and formula going directly into her belly.

There is talk about possibly moving Ella out of her private room, out into the open area. The reason is two-fold: to get us more mentally prepared for moving to the NICU 2, which is very different and jam packed with rows of babies. Also, to give Ella more things to look at during the day and more interaction from people passing by (this is more appropriate for her developmentally at this stage). We would love to keep the private room, but understand that this could happen any day.

We heard that the renal department came by to assess her kidneys and did not find anything that they are concerned about right now – – praise God.

The occupational therapist should be visiting Ella sometime this week to do an assessment of where she is developmentally and what type of therapies Ella might need when she returns home. Also, the occupational therapist’s goal is to train us to take care of Ella, from therapies, feedings, medicines, developmental challenges, physical therapy, etc. We are looking forward to what she has to say and working with her over the next several weeks.

Par has been successful at remaining off of ECMO. If he can remain stable over the next couple of days, Dr. Kays might look to do his repair surgery. Please continue to keep him in your prayers.

Also, please pray for Ella to gain strength over the next several days. Her nose is a bit raw and irritated from the CPAP. So, please pray for her to continue to tolerate the CPAP as she has been doing.

Finally, please pray for Dr. Kays to have wisdom on when to take her off CPAP. We would prefer for Ella to stay on CPAP as long as needed to permanently move to the nose cannula rather than go back and forth, since it sets Ella back on her progress.

Thanks for joining us on our knees throughout this time.

Joan and Steve Odell on November 7th, 2007 at 9:05 pm #

What a dear picture of her tonight! We are so happy for our little West family. I’m sure each new horizon is a bit unsettling – “He has brought us safe” are such encouraging and strengthening words — He will lead you through the next journey as safely and as sure as He has brought the three of you where you are now. We have such joy for Par – prayers continue for them and everyone there in the various NICU stages. Sleep well, sweet little girl – Momma and Daddy as well – Lord Bless and hugs – Steve and Joan

Tracy on November 7th, 2007 at 9:42 pm #

We are continuing to pray for your sweet girl. Our God is so good! What a blessing to get to see her sweet face each day. She has changed so much over the weeks! Thanks for keeping us up on her achievements! :0)
The Schultz family

Eusey Family on November 7th, 2007 at 9:46 pm #

We are on our knees for our Sweet Ella. Thanks for always keeping us update. We are praying all the time.
She sure does look sweet. Prayers tonight for little Jud and his family – he went to be with Jesus today.

Much love,


monika on November 7th, 2007 at 10:04 pm #

Amen beloved ones. We share your urgent faithful prayers. Ella is ever cute. Par and the other babies are in our hearts too. God bless us all through these miracles. Xoxoxo

Char Snyder Jordan on November 7th, 2007 at 10:06 pm #

Everything in forward motion is great. Hope all goes well. If Ella is moved into a more stimulating area it might be very educational to see her reaction to all the noise ect. We send our love, Aunt Char and Jim

Laura Blackwell on November 7th, 2007 at 10:17 pm #

The yawn melts my heart. Still praying for your little beauty.

Joel Snyder on November 8th, 2007 at 1:08 am #

Ella, I went to see your Avalanche play tonight and they won again. I am glad to hear that you and PAR had a good day today. I am praying that both of you keep up the steady progress and those baby steps. J&T thanks for the update. I will check on you tommorrow. Love, Grandpa!!!!!

Gloria & Red Jacobsen on November 8th, 2007 at 4:39 am #

Ella looks so sweet sleeping on her tummy. Thanks for the post I look for it every day ,to see how your little champion is doing.Still steady on the prayers at this end. God bless all of you.

Adrienne - Melissa's sister on November 8th, 2007 at 6:28 am #

So happy to hear the word “uneventful”… that is a GREAT word because not long ago that would not be the word of the day! I am thankful for all that God has done and continues to do. I am praying for Ella to gain the strength she needs to be able to MAKE A MOVE! ; )

Melissa on November 8th, 2007 at 9:18 am #

now the song going through my head is… Bust a Move!!
so I looked at the lyrics…oh my gosh!! Not exactly what I was thinking. Anyway, this part fits…
here’s to you Ella!!!
…..You look at the girl and your heart starts thumpin
Says she wants to dance to a different groove
Now you know what to do just bust a move
I hope you enjoy your new room.
Keep moving up and out.
You look great!!
Have another awesome day.
Praise God that your buddy Par has been stable and remained off of the ECMO. I pray for God’s guiding hand in his repair surgery. I hope all goes well.
For you… I pray that you would just grow stronger each day and that your mom and dad are able to just rest in His arms and find strength to persevere.
Go Ella Go!! Go GOD Go!!!

Love, Melissa

Melissa on November 8th, 2007 at 9:47 pm #

Did I mess something up? I posted at 9:00a.m. and there have been no new posts since.
I hope I didn’t offend anyone. The more I thought about it… I just couldn’t believe the lyrics. SORRY!!
I hope you all had a great day and I can’t wait to hear about the move.
Sleep well…
Love, Melissa

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