Posted (jooosh) in All Posts on November-26-2007

Ella Bun had a good day. At this moment, Mom is doing what she can to calm her down and put her to sleep.

We noticed that Ella’s breathing is a bit more labored this evening. Her breaths per minute have been in the high 90’s. She has been awake, but this is higher than we’ve seen the last couple days.

Ella did have a chest x-ray this morning and her lungs still look “wet”. Her IV fluids could be contributing to her edema, and is probably the reason for her increased breaths. To help with this, she going to be given Diamox in between her Lasix regiment. She’s been on this med before, when she was more edemic, and it seemed to do the trick. We’re hoping for similar success this round as well. She definitely doesn’t look as swollen as times past, but it’s still something to keep an eye on.

Clinically speaking though, Ella looks great! She was happy and interactive tonight, and slept real solid last night. Her scar from surgery is healing nicely, and she’s handling her increased feeds like a champ so far (she’s up to 8ccs per hour right now). On that note, her food is going to be increased 2ccs every 4 hours until she reaches a total of 22ccs per hour of continuous feed. In the same way her IV fluids will also be decreased in the same manner. At this rate she should reach full feeds in about 36 hours.

Baby Par continues to do excellent, and we’re praising God for his phenomenal progress. Baby Jonathan is doing a little better too. His liver function has started to improve, and his swelling has gone way down. His kidneys are not doing so good, but he’s scheduled for repair surgery this Wednesday on ECMO. We hope this surgery will help him take the next steps to getting better.

Father God, you are worthy of our praise in all things. We pray that you will be glorified though these children. Thank you for their lives, and the lives they touch. Let us seek your face in our daily lives, and with every breath praise your name. You are awesome Lord. Hallelujah! Amen

Williamsburg on November 26th, 2007 at 9:08 pm #

It occurs to me what a terrific education Ella is providing for Dr Kays and staff – she’s giving them a whole new ballgame to play – they should be paying _her_ royalties or something! Ok – you know I am NOT making light of the continued challenges; it just feels easier to put them in perspective knowing she is yawning and smiling and healing and blessed by her Daddy’s singing. Y’all are a cord of three strands now, so much the stronger for being woven together. We love you, miss you, smooch you and pray for you 24/7. XOXOXO

Tiffani Grow on November 26th, 2007 at 9:26 pm #

Hi guys, Sorry it has taken me so long to respond. I will send you a longer message later on e-mail. But I wanted to tell you that we have not forgotten about you and we are still praying for you all and baby Ella. I’m sad to see she’s still there and not home. It kind of makes me mad. (not kind of!!!!)This has been such a hard time for you all I know. God is truly giving you grace to stand in the middle of it all. He is so good and faithful and He will heal and restore Ella. In our thoughts and prayers, Tiff and Keith

Char Snyder Jordan on November 26th, 2007 at 9:36 pm #

Ella girl, keep up the good work. We are all pulling for your success and Par and Jonathan too. We love you. LOL Aunt Char and Jim

Joel Snyder on November 26th, 2007 at 10:27 pm #

Ella, I am so grateful to see you looking much better today. Keep up the steady progress. I am saying prayers for the “Three Amigos” Ella,Par,and Jonathan tonight for the Lord to heal and protect them. I will check on all you babies tommorrow. J&T thanks for the update. Love, Grandpa!!!!!

Roxie (Adrienne's friend) on November 27th, 2007 at 2:35 am #

It is so precious to see the little Bun in her jammies and yawning… I just love it. We will praise His holy name in the morning and in the night, in the mountain tops and in the valleys.
Psalm 84:4-12 says,
Blessed are those who dwell in Your house; They will still be praising You. Blessed is the man whose strength is in You, Whose heart is set on pilgrimage. As they pass through the Valley of Baca, They make it a spring; The rain also covers it with pools. They go from strength to strength; Each one appears before God in Zion. O Lord God of hosts, hear my prayer; Give ear, O God of Jacob! O God, behold our sheild, And look unpon the face of Your annointed. 10v. For a day in Your courts is better that a thousand elsewhere. I would rather be a door keeper in the house of my God than dwell in the tents of wickness. For the Lord God is a sun and shield; The Lord will give grace and glory; No good thing will He withhold from those who walk uprightly. O Lord of hosts, Blessed is the man who trusts in You.
I am marking this passage in my scriptures with your names, Josh, Tina and Baby Ella West.
Love to you, Roxie

Kristen on November 27th, 2007 at 6:49 am #

Morning sweet girl! Just know I am praying for you! Love, Your Colorado Fan Kristen

Joan and Steve Odell on November 27th, 2007 at 7:24 am #

Good morning dear Ella!!You are so precious and special – we thank God for you and your little friends Par and Jonathan. Your Mom and Dad are so special and we are all so blessed to share the West family journey. Our prayers continue for your little body to strengthen and grow – Lord Bless and hugs to all of you! Steve and Joan

John Michael Lee on November 27th, 2007 at 7:36 am #

She is so cute! I am glad she is doing better, our family continues to pray for her.

Felix on November 27th, 2007 at 10:35 am #

Ella is looking wonderful! Love her eyes!

The Lizotte Family on November 27th, 2007 at 6:00 pm #

I LOVE that yawn!!! couldn’t be anymore beautiful! I pray with you everyday. Big hugs

Laura Marold on November 27th, 2007 at 8:52 pm #

She is such a beautiful baby!!! I’m keeping you all in my prayers and thoughts. I’m glad to see her doing so well. Josh and Tina, you are such wonderful parents. Love, Laura M. and CYALA8RELLAG8R

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