Posted (Tina) in All Posts on April-5-2008

We decided to stay at the apartment today since it was hot and thunderstorms were raging outside. We had a nice lazy Saturday with the cats. And of course, the Bun is still as cute as ever.

She didn’t respond much to the bottle again, so we are hoping that she gets her skill back soon! We know that she has good days and bad days when it comes to her developmental goals. At least we know that she can finish a bottle, so we may just need to think of some new tricks to distract or get her interested again.

Besides that, it does look like she is gaining weight. We will get to weigh her at the pediatrician’s office on April 15th. That should give us some indication, although it is not a digital scale. We have been using the digital scale at Dr. Kays’ office to gauge her true weight gain.

Ella was happy and smiley again and we did some good physical therapy exercises. I’m hoping that the physical therapist will notice a subtle difference in her when we return to sessions in 9 days from now.

Our plans for making our way back to Denver are coming together. It looks like we will be making our way back over the Memorial Day holiday week.

Aside from challenges with exposing Ella to many people & kids on a commercial flight, there were a lot of concerns with the effect the cabin pressure and varying altitudes might have on her underdeveloped lungs. Also, figuring out portable oxygen via the airlines is a nightmare. So, driving back is a better option.

If we had a larger car, driving back would be easier. Our VW Jetta is very cramped with Ella’s seat and oxygen supplies in the back seat. Plus, adding 2 cats to the mix is not my favorite idea. Then, where do we place the items we have accumulated since we have been here for almost a year???

After researching many options, most were extremely expensive. So, the best and most cost effective plan is the following: First, Josh and a buddy from Orlando will be driving our car back to Denver with the cats over the three day weekend. Then, they will both fly back to Florida. When Josh lands, he is renting a minivan from the airport, driving back to Gainesville, packing up our belongings and driving. We will take our time and drive back to Denver over 5 days. My mom will fly in from San Diego to meet us, so that she can help me acclimate to my home with Ella while Josh returns to his place of employment.

Now that we have the dates chosen, we are in high gear to get all the details arranged. We have about 7 weeks left to figure it all out. Believe it or not, there are a lot of things to coordinate between doctor transfers, prescriptions, home medical equipment along with general moving details. At this point, we should be professionals. Can you believe that this will be the 16th time that Josh and I have moved over the past 13 years? Crazy!

We are looking forward to going back to Colorado. In the meantime, we pray that Ella will continue to remain stable and gain weight.

Thanks for the support and prayers. All of you have given us such a strength during this season of our lives.

Chambers Family on April 5th, 2008 at 8:49 pm #

Those are some of the cutest pictures! Love them. How exciting to be planning the journey home. If you want to pack up in advance check out PODS and DOOR TO DOOR. Pack up everything in there except what you need to drive and head home. Put the cats on a plane. Good luck. I will really enjoy the travel blogs. You are amazing to keep this up daily. I am sure when Ella is bigger she will poor over this blog with smiles, laughter and tears. How Cool!

Jim and Char Jordan on April 5th, 2008 at 9:00 pm #

She is such a ham. Boy we sure know who her parents are a where all that funny faces etc. came from. We hope Ella can adjust to the altitude. I have a rough time over 3,000 feet. I know she doesn’t like change. One more big adventure in her brief little life. We will pray for a great experience. LOL Aunt Char and Jim

Joel Snyder on April 5th, 2008 at 9:36 pm #

Ella, Just got up from my nap before going to work. I am so happy to see you smiling and having fun. I hope your checkups with the PT,Peditrician, and Dr.Kays go well. Tina and Josh glad to hear that the plans for coming home are coming along. Taco and Manny are both doing great. Taco has her appointment at the eye doctor on the 8th but I can tell she is making good progress with the new medication. I will check on you later. Love,Grandpa!!!!!!!!!!

Pat & Bob Hadden on April 5th, 2008 at 10:49 pm #

Good to hear you’re planning on heading home. After doing three cross-country moves (2 by car from LA to NY) with our cats, two tips. We bought a large collapsible crate (mesh over a frame) that would fit in the back of the minivan. It was large enough to hold the cats food (non-skid bowls) and water and bed and litter box. And with a blanket draped over half, they could hide and not escape when doors opened. Also check the motel rooms before letting the cats out. We took nightstand drawers and pillows to block under the beds and make sure to check the bathrooms. Motel bathroom often have a small opening to the side of a sink or toilet as a pluming access panel…even the pet-friendly motels were guilty of this. And cats do get car sick…we found we had to force water on them (had a big syringe) to make sure they didn’t dehydrate. After all you’ve been through with Ella, moving the cats will be a piece of cake, though! Bob and I have moved way too many times but not with such daunting circumstances. Our love to you as you prepare for this new stage in your lives.

Lesli on April 6th, 2008 at 6:22 am #

We need to figure out if you have any open time for a Richards visit before you move! Or will you be driving through Atlanta on your way out?
We have a full basement apartment that you could stay in if you need it, and could make sure kids are contained away from Ella.

Love, Lesli

Williamsburg on April 6th, 2008 at 7:09 am #

Even knowing how much Ella’s exposure will have to be limited, we SO cannot wait to have you home. The trip details sound daunting, but after everything else you’ve been thru, what’s another little cross-country move, right? Praying diligently for good sleep and continued daily progress with all of Ella’s developmental issues as you make preparations. Please don’t hesitate to let us know of any way we can help. Love you bunches. XOXOXO

Post a comment

Name:  (required)
Email:  (required)