Posted (Tina) in All Posts on April-24-2008

Her PT session this morning went well. Since tummy time was successful yesterday, we started in that position again.

Ella tolerated the therapist stretching her and rolling her to each side. Then throughout the day, we had tummy time on the Boppy. Once again, she decided that it was pretty comfy.

We tried to switch durable medical equipment companies today, and they showed up, but they did not have 90% of what we needed for Ella. It was a little frustrating since I spent time on the phone with the branch manager reviewing our needs in detail. I took the time to do this in advance because I have noticed how there is little support for infants and pediatric patients, in general, versus adult patients. Here is an example: a standard oxygen compressor has a regulator on it that delivers oxygen in increments of .5, 1, 1.5, 2, 2.5, 3, 3.5, 4, 4.5, 5 liters. However, the pediatric oxygen compressor we have been using has a regulator on it that delivers oxygen in increments of .1, .2, .3, .4, .5, .6, .7, .8, .9, 1 liter. Her oxygen need started at .5 and is now at .4. A pediatric regulator on the compressor gives us the ability to control the oxygen in smaller increments. We don’t ever use anything above 1 liter. If we were requiring more than that amount, Ella would be sick and likely in the hospital.

Needless to say, the switch was not successful. I’m just thankful that we pushed to do the switch this month. If we had waited right up until the few days before we moved, it would have been stressful. At least we have more time to get things organized before we move back, so we don’t end up having to ship a bunch of equipment.

We have another early PT appointment in the morning. Hopefully, it will go well again. I think the PT is going to stick with tummy time, since Ella is responding to it.

I can’t believe that the Bun is 9 months old today…wow. And there are only 37 days until we walk in our front door in Colorado.

Tara Hayes on April 24th, 2008 at 8:19 pm #

Wow! Okay, so I know you both see Ella everyday – but for those of us who keep up only occasionally via the web and pictures – she is incredibly stronger and going through such a growth spurt! And did I mention that she is absolutely adorable?

Jenn M on April 24th, 2008 at 8:38 pm #

OH Tina!!! These pictures nearly brought me to tears. I remember SO clearly the struggles we had with tummy time and how defeated I would be everytime I was told how weak her trunk was, how weak her overall tone was, blah, blah, blah! I wish I could give you a peek at your future so you’d really believe how today is a glimpse of proof for how much even further she’ll be in a year; it’s beyond remarkable I promise! At the same time, continue to enjoy her now, she’s going to catch up, I PROMISE! What a rockstar your girl is!!! GO Ella!!!

Jim and Char Jordan on April 24th, 2008 at 9:16 pm #

Go Ella Go. We love you. LOL Aunt Char and Jim

The Laz Fam on April 24th, 2008 at 9:49 pm #

pink is definitely her color ~ and look at that beautiful hair! lovely!
blessings ~ KTJB

Anne on April 24th, 2008 at 9:55 pm #

There’s nothing more beautiful than a sleeping baby!

Julie Kirk -Saudi Arabia on April 25th, 2008 at 12:17 am #

OMG that i just about the cutest…
God’s blessings for your family to have a great weekend.

the Lizotte family on April 25th, 2008 at 4:37 am #

Try contacting the local hospital nicu in colorado and see where they get their supplies from. Ella is doing great and she looks beautiful as always.

Matt, Abby, Austin & Caed on April 25th, 2008 at 5:06 am #

Every day she seems to make a little more progress. It’s so great to see. We continue to pray for you three, especially since you’re going back to Denver soon. Our prayers will follow you.

Steve and Joan Odell on April 25th, 2008 at 5:44 am #

What a blessing – she is getting so strong – PT is definitely working for her. She looks great – love that pink. Hugs – Steve and Joan

tamara tessmer on April 25th, 2008 at 6:08 am #

I was looking back at Ellas journey and it is amazing what God has done. You know it in the back of your head, but when you look back through all the posts, it hits you square in the face. We truly serve a mighty God. I have been reading everyday though have not posted in a while. I am so glad to see you are getting ready to go home. We will miss you when we come to see Dr.Kays in June. Maybe we can get together before that. I might be heading up that way next week. I willl give you a call. Anyway, the Bun gets sweeter everyday. I can’t wait to see all these kids running around one day.

Love you guys,

Kuhn Family on April 25th, 2008 at 7:09 am #

I look forward to Grandpa’s messages, but none this morning. I love how much he loves that Bun. Anyway, I am glad to see that she is doing good on the boppy. I think most babies like sleeping on their tummies, anyway. It looks like she has more meat on her arms and it is working it’s way down. Great job with all that feeding. Eat away, Baby Bun! Too bad about the switch, but it is good that you planned way ahead. Have a great and blessed day! LoriAnn, Tom, Tyler, Zackary, Seth and Jonny btw, my boys love seeing the pictures every morning before they go to school. “Can we see Ella now”? I haven’t told them that they are going to have to start weening themselves soon! lol

Chambers Family on April 25th, 2008 at 7:19 am #

Look how high she is holding her head! You are a patient and I can only imagine TIRED Mommy. I am already trying to not read the blog every morning so I can used to a weekly or monthly post. =)

Mollie Rosing on April 25th, 2008 at 12:29 pm #

I can’t believe Ella Bun is 9 mos old! She is looking so strong and so precious. You guys are constantly in our daily prayers.

All our love, Mollie and Jim and fam

Joel Snyder on April 25th, 2008 at 1:07 pm #

Ella, I am sorry that I didn’t post sooner but worked a little late and slept in with Taco and Manny. You are doing great and you keep up the steady progress with the food and PT and you will catch up. Get ready for a wonderful weekend with Mom and Dad. I will catch you later “Gator Girl”. Love,Grandpa!!!!!!!!!!!!!!

deanna on April 25th, 2008 at 2:59 pm #

how sweet she is soooooooooooo big on youre flight back if you stop in dallas i would really like to see yall

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