Posted (Tina) in All Posts on November-10-2008

Ella had a great day with Kelly.

The rate on her food pump was increased to 32ccs per hour and there were no problems. It is so good to know that we are at her volume goal for food. Now, we just need to figure out the right amount of diuretic. Eventually we may add corn oil to her nightly feeds again, just to give her some more calories.

Tomorrow, Josh and Kelly will be taking the Bun to get labs toward the end of the day. We’re going to try and go to a facility that is closer to our home. I’m hoping everything goes smooth and that we find a “good stick”. It is so hard to take Ella for something that she dislikes so much and to have multiple sticks or more drama than necessary, just makes it that much harder. Please pray that labs will go smoothly for all involved.

When I got home tonight, Ella was in a great mood. I had a good time hanging out and tickling her. It was making her kick, squirm and laugh. I miss being with her each day, but I have already enjoyed the break during the day (work) and coming home to see her. Ella is making me feel recharged, which did not used to be the case. I love it.

Praying each day for strength from above…strength to trust and believe that He has a plan for our lives. He has orchestrated every detail. Ella is such a fantastic reminder of this truth.

Psalm 62:8 (NIV)
Trust in him at all times, O people;
pour out your hearts to him,
for God is our refuge.