Happy 2 weeks Ella! Look at the expression on that face…
Although Ella’s stats are okay, they are not great. The fluctuations have been a bit much over the past 2 days. Therefore, Dr. Kays decided to turn the ECMO machine back up to 160 this morning. He wants to give her body a bit of a break: her kidneys, lungs, liver, etc. As you might imagine, all the chemicals running through her little body can have some lovely side effects!
Normally, they try and keep these babies flat on their back before they have surgery to minimize the shifting of contents in their chest. Post-surgery is when they typically can place them in other positions. But in this case, Ella has a build up of fluid in her body, mostly evident in her back. So, they have propped her up more so she is resting on her left side and plan to prop her to the right hand side later today. To decrease the puffiness and fluids, they have increased her dosage of Lasix.
This morning has been an emotional one for Mom & Dad. Just part of the roller coaster ride experience. We just want our baby girl to be okay and it is such a tough thing to experience these raw emotions.
All of this is not in our control. The only thing we can do is cling tight to His promises. A supporter and prayer warrior that heard about our story emailed us recently with this verse: “May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit” (Romans 15:13).
With this downturn on stats, this may not be Ella’s week for surgery. It seems that her body needs more time to strengthen. Please continue to pray for her body to heal and become strong…and pray that her parents can hold tight to the truth: “Be joyful in hope, patient in affliction, faithful in prayer” (Romans 12:12).
Jeremiah 29:11 "For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future."
Kim Semyan on August 7th, 2007 at 9:55 am #
She’s just a beautiful little girl! My very best to you in life & faith!
Eve-Marie on August 7th, 2007 at 10:35 am #
I heard a saying once …. “if God leads you to it, He will lead you through it.” It didn’t mean much at the time, but watching what you have been experiencing, suddenly gave it quite a bit of meaning. Your faith is a lesson to us all, and Baby Ella is off to a very good start in life of understanding what true love is all about. All of my good thoughts and blessings for the three of you, coming your way….
Ani on August 7th, 2007 at 10:52 am #
Tina, Josh and little Ella…we love you and are praying for you.
Kim Brennan on August 7th, 2007 at 11:08 am #
She is beautiful! My thoughts and prayers are with you all of course. What an amazing gift to have this little person in our presence. Keep me posted please!
Joel Snyder on August 7th, 2007 at 1:47 pm #
Ella, Keep up the good work little girl. Slow and steady and you will get better soon. Tina and Josh what a couple of courageous warriors. I salute both of you and I am praying for all three of you. All my Love, Grandpa
Deb Carnsew on August 7th, 2007 at 4:50 pm #
My day starts and ends with your updates and you are in our daily thoughts and prayers. Stay strong, little Ella.
Auntie Shannon on August 7th, 2007 at 5:25 pm #
Sweet Ella, just thinking about you and your parents. Hope you have a great night. Hugs
Aunt Ginny Snyder on August 7th, 2007 at 7:35 pm #
Dear Ella, Tina, and Josh, just wanted you to know that I check on you daily and that you are in my prayers.
Char Snyder Jordan on August 7th, 2007 at 7:42 pm #
We are so very proud of your parents Ella. We have had children and know how heart wrenching these times can be. We pray for God’s will and love to surround you. We know that you are a celestial baby. Sleep on little girl. Gain strenghth and fight for your parents. We love you so. Aunt Char and Jim
Dana Chambers on August 7th, 2007 at 8:44 pm #
You are amazingly strong. So strong. Our hearts are with you. You have already become an amazing Mommy and Daddy that Ella is so proud to have!
Pam on August 8th, 2007 at 7:11 am #
I don’t pretend to know what your family is going through emotionally. Sometimes it is in the busy-ness of life in which our attention is called upon to help us focus on what’s important. I send my sincere wishes of support during this time. You know that miracles happen when you least expect it and are always part of the ultimate plan of our lives. Ella is already a miracle and will continue to be a blessing. You are all in my prayers-Love Pam Post a comment
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