Posted (Tina) in All Posts on November-23-2008

Ella is still retching way too much. We’re not sure if she is still creating lots of secretions from teething or it is a “wet” thing. Tomorrow, we are supposed to get labs done. This will give an indication on her dosage of diuretic and whether she is in a good place or if we need to make more adjustments.

She is not sleeping well. Waking up several times each night is becoming typical. Last night, it was about 8 times. Typically, she wakes up coughing and retching. I try and give her something to drink, which doesn’t always work. Many times she can’t swallow any liquid without retching more. I think that retching has to be one of the worst side effects for Ella. I just cannot imagine doing that all the time, day and night.

The good news is that she seems to be maintaining on 1 liter of oxygen. We’re hoping things continue this direction. We’d really like to avoid the hospital.

With Thanksgiving around the corner, this verse comes to mind.

Psalm 100:4-5 (NIV)
Enter his gates with thanksgiving
and his courts with praise;
give thanks to him and praise his name.

For the LORD is good and his love endures forever;
his faithfulness continues through all generations.

As we struggle through the latest challenges with Ella’s care, we are reminded of His faithfulness. Just last year, Ella was recovering from surgery and was still intubated. Although we have our daily challenges, we praise Him for our baby girl and how far she has come on this journey.

Christe Mitchell on November 23rd, 2008 at 9:36 pm #

Praying everything goes well with your labs tomorrow. Keeping you all in prayer. God Bless!

anne (CA) on November 23rd, 2008 at 10:12 pm #

Amazing to see how far Ella has progressed in only one short year… she’s truly a miracle. Thanks to YOU guys for your wonderful “sense” about Ella and her needs, and for continuing to maintain this blog when you have so many other things to do!

megan on November 24th, 2008 at 8:12 am #

Goodmornin Doodlebug… Even though I would love to see you, I don’t want it to be in the hospital. I hope that this gets better for you and that you can have a wonderful thanksgiving. There are so many things to be thankful for.=) Hugs

Joel Snyder on November 24th, 2008 at 8:33 am #

Ella, I hope that your labs will give the answers about your retching and we can adjust your medicine. I am so thankful for you and your Mom,Dad,Kelly and all of the wonderful people who follow your story on the blog. Happy Thanksgiving to everyone. I will be at your house for Thanksgiving. I will catch you later. Love,Grandpa!!!!!

Jennifer Harris on November 24th, 2008 at 9:37 am #

Peace and Blessings to you and our prayers are for Ella’s complete recover.

Joan and Steve Odell on November 24th, 2008 at 10:18 am #

She is just a special miracle – to all of us. What a doll. Hold tight to Him and He will provide as always. Hugs and prayers – Steve and Joan

Laura Leichty on November 24th, 2008 at 12:44 pm #

Praying in Indiana for your beautiful baby girl! She is so precious! I check up on her daily and know the Lord has HUGE plans for her and all of you! Thank you for being so faithful even when life is hard. Your example touches more people than you will ever know! God bless all of you and Happy Thanksgiving!

Schultz Family on November 24th, 2008 at 10:14 pm #

She looks great! Such a sweet spirit..
Hoping for a restful week for you all~

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