Posted (Tina) in All Posts on November-25-2008

Ella had an active day.

Aside from hanging out with Kelly, her new OT came by for a visit. Kelly had nothing but amazing things to say about her. We’re excited that she has been assigned to Ella. She gave off the impression that she really wants to help Ella. That is one of the most important aspects of a therapist in Ella’s life: someone that really cares and wants to help her make steady progress.

She had lots of great ideas to share about tips to implement that might help Ella. Some things are just technique and practice while she also recommended that we purchase a few tools. When I came home and read the progress notes, it makes me realize how behind Ella is with her feeding skills. We made so much progress in Gainesville and yet, now it seems like Ella’s oral aversion is stronger than it ever was before. It just means that we have lots of work ahead of us. And just like her health issues, you take a ten steps forward and several back. Yet, your net gain is still there. Hopefully, we can get a consistent OT therapist and begin moving consistently in the right direction.

As we have shared, we know we are blessed with a great PT. Now, we think we may have found our match for an OT. Heck, we already felt connected before she walked in the door. She is from Southern CA and just moved from Rancho Santa Margarita. We used to live in Ladera Ranch just down the street.

Later in the day, the PT showed up for physical therapy, but Ella decided that she was done working for the day. We’re so fortunate that Ella has multiple sessions each week, so that she can have these off days and it doesn’t delay her progression too much.

We did not hear about labs today. That is a bit annoying. We want to know so that we can adjust her medicines, if needed. We’re hoping for some correspondence tomorrow before the holiday weekend.

Once again, I still can’t believe that it is Thanksgiving week. It’s crazy. It is amazing to think that Ella was in the NICU last year. She was hanging out with her boyfriend Par who was near her crib. And I’ll never forget when Par made matching hats for him and Ella to sport on that glorious day.

Also, it makes me reflect on the special NICU nurse that opened up her home to us so that we could partake in a home-cooked Thanksgiving meal while we were away from our family. Although it was a different Thanksgiving, it is one we will never forget.

Hebrews 12:28 (NIV)
Therefore, since we are receiving a kingdom that cannot be shaken, let us be thankful, and so worship God acceptably with reverence and awe.

sherry martinez on November 25th, 2008 at 11:20 pm #

so glad you found an OT match. sounds like things might just be moving in the right direction for everyone. As Thanksgiving is only a day away I would like to give thanks for finding your site.You have always given me great hope. as this is caydens first thanksgiving I am truly reminded of gods great blessings he gave us all. with love baby cayden and sherry

The Dirirm Family on November 26th, 2008 at 5:43 am #

So excited about the OT. I have been praying for a good fit. May amazing progress follow. Happy Thanksgiving to you all.

megan on November 26th, 2008 at 8:34 am #

Goodmorning Doodlebug.. I am so happy that you have some good people in your corner. I hope that the lab results are good. I hope all of you have a wonderful turkey day!! Hugs

Joel Snyder on November 26th, 2008 at 11:01 am #

Ella, I am excited to hear about your new OT and praying that you can start to make steady progress for her. I am praying that your labs are O.K. and can’t wait to see you tomorrow and I am going to bring your pals Taco and Manny along for Thanksgiving. I hope you have a good day. Kelly have a wonderful day with your family. Happy Thanksgiving to everyone. Love,Grandpa!!!!!!!!!!!!!!!!

Eve Johnson on November 26th, 2008 at 5:54 pm #

Happy Thanksgiving all. I’m glad you’re able to celebrate this year at home!

Jim and Char Jordan on November 26th, 2008 at 10:26 pm #

Happy Thanksgiving Little Family. We love you. And miss being together.

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