Posted (jooosh) in All Posts on March-5-2009

Ella had a good day today, but was a little more grumpy than usual. Her weight is up only slightly…9.3 kilos total.

Ella continues to improve in her core strength. She has been able to maintain about 20 minutes of sitting up on her own. Kelly has been working on increasing Ella’s flexibility with some stretching techniques. The Bun only tolerates this for so long before she lets Kelly know that she’s had enough.

Kelly watched Ella this evening so Tina and I could enjoy the company of some friends. Tina played some Bunko with a group in the neighborhood and I went to visit a family that is close to our hearts.

Thank you for continuing to follow us on this journey. I know there are many that comment, but even more of you that don’t. It means so much to have all the support and prayers.

Please pray that Ella continues growing stronger and that we’ll be able to ween her O2 and begin tirating her meds down. We have noticed that her O2 requirements may have increased a bit the last 24 hours. Not sure what to think about it at this point, but she’s still below her previous baseline of 1 liter. I looked at Ella’s numbers again after publishing this post and they were still low for the amount of O2 she was on. She was saturating 92% on a flow of 600mls. I checked the system, the line, and then Ella herself. Yeah…her cannulas were totally out of her nose on the right side of her face. Helps to have them IN her nose =). After getting her situated, I was able to turn her O2 down to 250mls. After a few minutes, she settled in at 99% saturation and her heart rate was as low as 94bpm. Feeling better now…and off to sleep myself.

Praising God for all the progress Ella has made and for blessing us with such a precious gift.

aunt Marla on March 6th, 2009 at 8:00 am #


Williamsburg on March 6th, 2009 at 8:14 am #

Love that face: “Ok, so I’m sitting here in beans. Big deal. What next, guys?” And the final one, with those eyes! I’m sticking with my story – you can just tell that better circulation is having an effect – she just looks better. Precious girl – sending all our love and hugs and big, fat smooches your way (with a few left over for your parents.) Shalom. XOXOXO

Julie on March 6th, 2009 at 10:06 am #

The bath-o-beans pictures crack me up. She knows how to turn on the pathetic face, doesn’t she?

sherry martinez on March 6th, 2009 at 10:13 am #

thank u for always being here everyday i read and pull strength from u all. oh and great job ella hugs from ca from baby cayden and sherry

Joel Snyder on March 6th, 2009 at 4:56 pm #

Ella, You sure look great in your bath of beans or just reading your books. I am so excited to hear the new numbers for you each day. I am praying that you keep up the great progress. Have a great weekend. Catch you later. Love,Grandpa!!!!!!!!!!!

Schultz Family on March 8th, 2009 at 8:41 pm #

It’s so good to see how God is continuing to strengthen and uphold you all! :0)

Jennifer Harris on March 9th, 2009 at 2:58 pm #

Ella, we are certainly pleased to know that you are progressing and continue to share your beautiful photos with us!

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