Posted (Tina) in All Posts on March-9-2009

It was another rough night. By 3am, Ella had already been up 8 times. We’re trying to formulate our thoughts for our next doctor appointment – we just have to try to see if the Captopril medicine is causing this insomnia. It has been going on consistently (with about 1-2 “good” nights per month) for the past 5 months since Ella left the hospital.

Aside from me not getting sleep all night, I’m concerned for Ella too. She is a growing baby. It cannot be good for her to wake up this much, this consistently over time. She needs her rest too. So, we’re praying for wisdom in this area. This cannot continue to last and yet, we don’t have a light at the end of the tunnel. We don’t know that it is just a) teething or b) a cold or illness to where it lasts for a couple of weeks and goes away.

It was a mellow day for Ella and Kelly – no therapy appointments. So, they just hung out and played, working on her exercises.

And not that it is important, but Kelly happened to take a snapshot while giving Ella her Flovent breathing treatment. Yep, this is twice per day and Ella does not dig it!

And unfortunately, Ella’s great mood and great streak of days did end late last week. She was cranky and whiny over the weekend and into today. Right now, she also has been retching a lot (likely due to all the extra secretions from teething) and has a snotty nose she is battling.

On a positive note, we are still on lower oxygen requirements and have not run into any fluid issues since her procedure. This Wednesday will be 2 weeks. That is typically when we start to see problems, so we’ll be watching her oxygen requirements, heart rate and respiratory rate to see if she is having any challenges.

As always, thanks for the extra support and prayers.

Joel Snyder on March 9th, 2009 at 7:44 pm #

Ella, I am praying that we can find the answers to your sleeping problems. I know this is not fun for you or Mom and Dad. You sure look like playing with Dad is working. Try to get some good sleep. Love,Grandpa!!!!!!

Amber Riley on March 9th, 2009 at 8:41 pm #

Not getting sleep is not good. Poor Mommy and Daddy. That can be so rough. Praying they find an answer for you…

Auntie Shannon on March 9th, 2009 at 8:59 pm #

Sending sleepy thoughts.


Daphne Close on March 9th, 2009 at 10:31 pm #

Our three kids total about 8 times of waking up, but for much different reasons. I will pray for your family!

Williamsburg on March 10th, 2009 at 7:56 am #

Wow. The frustration and effects of not sleeping well on top of not having an answer for how to address is extra tough. Know that, as always, you are in our hearts and constant prayers for God’s support, guidance and healing in the midst of it all. All our love. XOXOXO

Jim and Char Jordan on March 10th, 2009 at 8:52 am #

I certainly have empathy for you and Ella’s night time activity. I don’t know the answer. Marc was a premie and he was used to eating every 2 hours and did not learn to sleep through the night until he was 3. It was a trial for me. It was a pattern problem of being used to reassurance and receiving nurishment at night. I think this is a real challenge. Perhaps someone who can be paid to watch over Ella a few nights a week so that Mom and Dad can catch a few winks now and then. It is not possible to allow Ella to get whacked out of shape and cry herself to sleep as I finally did with Marc. I know that parents with night-time challenges eventually have to get someone good who can withstand the night of sleeplessness. Perhaps a night nurse? Just guessing. All my love to you and yours. Aunt Char

Lana Cordier on March 10th, 2009 at 4:20 pm #

Hopeful that there will be answers for you guys some time soon! In the meantime, Ella repeat after me: “I’m getting sleepy…very, very sleepy”.
Warmest regards, Lana

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