Posted (Tina) in All Posts on March-20-2009

Ella still woke up several times last night, however, she seemed to be less restless overall. Each time, I was in and out of her room quickly. Also, her pulse oximeter went off 5 separate times throughout the night. I still haven’t figured out why this is happening. Once, it was her cannulas out of her nose. But the other times are still a mystery. By the time I get to her room, sometimes it looks like her saturation was low and is steadily climbing back into range (does she not breathe momentarily?) while other times everything seems fine (maybe the foot sensor loses connection for a second?).

We have discovered for a while now that the food pump didn’t seem to be working right. When we would wake in the morning, it would state that it delivered a certain volume, yet there was a lot of food left in the food bag. So, Kelly did an experiment late yesterday. We realized that the food pump was off…by quite a bit. This might also explain why Ella was not gaining the weight we thought that she should with the incremental increases in fluid. It also means that although she has been getting slight increases in fluid (we increase the feedings during the day that we measure ourselves), she certainly has not been getting the volume we expected. Today, they replaced the food pump. Just to make sure, Kelly tested it and it worked fine. So now, we will be back on track to increase Ella’s fluid (knowing it is accurate) and expecting to see some great weight gain over the next several days.

Those other teeth are working their way out because Ella has been extra droolly today. This has also caused more retching since she does not manage her secretions well. This also contributed to her fussy mood. She simply did not want to do certain things, like eat. However, she still enjoyed her PT session after some coaxing. And of course, she has still continued to be extra clingy.

We’re excited that it is the weekend. We plan to go and visit Grandpa and the dogs tomorrow and hope the 70 degree weather forecast comes true!

Eve Johnson on March 20th, 2009 at 6:08 pm #

Oh, if you two could only see from the outside looking in for just 5 minutes. Every time I peek in on her, Ella looks bigger, stronger, and with that expression on her face, closer every day to the terrible twos!

Jim and Char Jordan on March 21st, 2009 at 6:24 pm #

She looks so good. Even though she is grumpy and teething. Just to see the spirit through her eyes. Just to see her sitting on her own. I am amazed.

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