Thankfully, Ella slept last night….really well. Her pulse oximeter went off around 3am. A couple of other times, she woke and coughed. But I waited and listened via the monitor, and she went back to sleep on her own! The last two nights have been better sleep than previous weeks/months. Maybe Captopril being gone is a big part of the sleeplessness, like we thought. I can only hope that this is a new trend. I can tolerate her waking a few times per night, but more than that for an extended period of time starts to get very old…especially when it seems like there is no end in sight.

The better part about sleep last night is that her oxygen requirements were improved over the previous night scare. I’m not sure if her body is still adjusting to things, but it seemed to rebound. That was a welcome surprise as we were prepared for the worst. We’re still watching her closely, but are hopeful that fluid is not being retained.

It was blizzard, snowy conditions in Denver today so both of her therapy appointments were canceled. Our appointment with Dr. Perry was canceled too. Instead, we get to see him early next week. So, Kelly and Ella dreamed of warmer, sunnier places and tried on hats while playing to escape the reality of the outside weather.

For tonight, we are watching the snow accumulate and blow around outside while we rest in our warm house…thankful.

Philippians 4:8-9 (NIV)
Finally, brothers, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things. Whatever you have learned or received or heard from me, or seen in me—put it into practice. And the God of peace will be with you.