Posted (Tina) in All Posts on March-26-2009

Thankfully, Ella slept last night….really well. Her pulse oximeter went off around 3am. A couple of other times, she woke and coughed. But I waited and listened via the monitor, and she went back to sleep on her own! The last two nights have been better sleep than previous weeks/months. Maybe Captopril being gone is a big part of the sleeplessness, like we thought. I can only hope that this is a new trend. I can tolerate her waking a few times per night, but more than that for an extended period of time starts to get very old…especially when it seems like there is no end in sight.

The better part about sleep last night is that her oxygen requirements were improved over the previous night scare. I’m not sure if her body is still adjusting to things, but it seemed to rebound. That was a welcome surprise as we were prepared for the worst. We’re still watching her closely, but are hopeful that fluid is not being retained.

It was blizzard, snowy conditions in Denver today so both of her therapy appointments were canceled. Our appointment with Dr. Perry was canceled too. Instead, we get to see him early next week. So, Kelly and Ella dreamed of warmer, sunnier places and tried on hats while playing to escape the reality of the outside weather.

For tonight, we are watching the snow accumulate and blow around outside while we rest in our warm house…thankful.

Philippians 4:8-9 (NIV)
Finally, brothers, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things. Whatever you have learned or received or heard from me, or seen in me—put it into practice. And the God of peace will be with you.

Tara Hayes on March 26th, 2009 at 7:16 pm #


Jim and Char Jordan on March 26th, 2009 at 7:19 pm #

She looks so good. We are continuing to pray for relief for her and sleep for you Tina. We are so happy. Have a good week. Love, Aunt Char and Jiim

Fran Jarrett on March 26th, 2009 at 9:29 pm #

You are really styling in your hat Miss Ella! The last photo is my favorite. And of course I love the one of you checking out your frog!
Snuggling in a warm house was the place to be today for sure. We certainly need the moisture but all at once was quite a surprise!! Happy to hear that you are all catching up on some sleep.

Amber Riley on March 26th, 2009 at 10:25 pm #

Love the hats!!! Ella you are way too cute!

kristin thompson on March 26th, 2009 at 10:25 pm #

Yo girlfriend! Ella you are working those hats!!! I’m sorry that the snow is delaying all of those appoitments. Maybe you just needed a little “girl” time” 🙂

Here’s to Spring little miss! Love you! Love you all West Family!

Julie Kirk on March 26th, 2009 at 11:03 pm #


GrandmaSherl on March 27th, 2009 at 4:06 am #

OMG she is so darling. Hope you enjoyed a day at home. This is still March. It’s so nice to read all the good things that are happening. Praises to God!

The Laz Fam on March 27th, 2009 at 1:36 pm #

woo! she’s got quite a ‘tude in that last one… so fashionable… we’re glad things are going smoothly with our sweet friends!

kara on March 29th, 2009 at 9:03 pm #

Love the hat!

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