Posted (Tina) in All Posts on August-17-2007

Ella had a good night. She maintained her stats and is progressing in the right direction, albeit slowly with baby steps. She continues to have “episodes” where she gets very fussy which cause her stats drop significantly for a short period.

This is something that they are working very hard to manage, as these episodes are not good for Ella. There is a potential for lack of oxygen to the brain when her stats drop so significantly. They are hesitantly using small doses of paralytic meds to keep her calm.

As of right now, her surgery of shifting all the contents out of her chest is still scheduled for Monday at 8am.

Dr. Kays did mention the possibility of removing her cannulas over the weekend.

If you remember, the cannulation procedure was Ella’s first surgery where they prepared her for ECMO. An incision was made on the right side of her neck and a cannula (tube) was inserted in her jugular vein which leads to the right side of the heart while another cannula (tube) was inserted in her carotid artery. This surgical procedure was performed so that the blood supply could be exchanged with the ECMO circuit.

The underlying message: if Dr. Kays is thinking about removing the cannulas, we take this as a good sign! Many times, he will leave the cannulas in place, just in case the baby needs to go on ECMO again (the cannulation procedure is a 2 hour surgery – -not something you want to repeat if you don’t have to).

Now, it does not rule out the possibility that she would need to go back on ECMO. But the fact that Dr. Kays would even consider removing her cannulas at this stage means that he feels pretty confident that she will not need to go back on ECMO.

Please continue to pray that Ella’s body will get stronger, her fluids would reduce and that she will remain calm. We want to see her “episodes” decrease, so that she can maintain her stats and not sustain any damage to her brain due to lack of oxygen.

P.S. For those of you looking closely, you might notice that Reneke has a new buddy. Ella’s cousins sent a monkey friend to hang out with Reneke and watch over her.

His name is “Mr. CR”, because these represent the initials of Ella’s cousins (Megan, Richard, Claire and Ryan) and he’s Mr. Cousin to Reneke. We welcome him!

Char Snyder Jordan on August 17th, 2007 at 9:13 am #

We are amazed at the wonderful extended family that is so close to God. We will be praying continually for Ella’s continued progress. Love to all, Aunt Char and Jim

Christina DuHart on August 17th, 2007 at 10:13 am #

Josh & Tina
We are so happy yet again to hear that Ella is making progress. Keep up the good work Ella, we’re all cheering for you.
Lots of Love The DuHart Family

Fran Jarrett on August 17th, 2007 at 10:23 am #

It is great to hear that little Ella is progressing off of ECMO and that Dr. Kays has plans for her surgery. She is a fighter and prayers to our Lord will continue for Sweet Ella as well as you both.
Welcome Mr. CR. What a wonderful addition to the support for Ella and Reneke. How wonderful that Baby Ella has such loving and faithful cousins caring and praying for her! And I am sure everyone has been repeating Claire’s chant! Much love to all, Fran

Joel Snyder on August 17th, 2007 at 10:26 am #

Tina and Josh, Thanks for the great news and Ella keep up the progress and I am praying that you and Dr. Kay can reach your goal for Monday. I must also say that I welcome Mr.”CR” Reneke needs all the help he can get with Ella. I Love You All, Grandpa

Shannon on August 17th, 2007 at 10:31 am #

Way to go Sweet Ella! Baby steps every day is wonderful news. Love the name Mr. CR – so cute. Go Ella, No ECMO, No ECMO!! Tina and Josh your faith is so incredibly inspirational – you have no idea the hearts you have touched with your patience and faithfulness. I truly believe that is what is making all the difference for our Sweet Ella.

On a side note, this might sound dumb, but have the tried the night covers on her eyes so she is not awaken by light? I know they put these on Claire when she was having light treatments and it seemed to keep her very still. Just a random thought.


Ella’s favorite Auntie ; )

Pam on August 17th, 2007 at 10:44 am #

Just checking in and thinking of all of you. Wonderful to hear that Ella is getting stronger with each day and the removal from the ECMO. My thoughts and prayers continue to be with you all. Love Pam

Gloria Butler Jacobsen & Red on August 17th, 2007 at 11:16 am #

WE’re so glad to hear Ella is on the upswing! our prayers are going to the Father in praise and thanksgiving and continued prayers for total complete recovery! love Gloria & Red

Joan Odell on August 17th, 2007 at 12:31 pm #

How awesome — our prayers will continue for each of you that good rest and healing strength will happen and she will be ready to undergo a successful surgery and positive healing. She is such a little fighter and a beautiful little girl. Hugs and prayers – STeve and Joan

Patrick Brumfield on August 17th, 2007 at 12:48 pm #

It’s so great to hear about the answered prayers and the steps forward Ella is making. She’s a strong little girl, and a blessing indeed. We will continue to pray for more advances and health. Stay strong!

Lesli on August 17th, 2007 at 5:24 pm #

Just checking in our sweet baby once again! We are so happy and are praising God for being the defender of the weak and making her so strong through all the faith and love her parents are showing. We are praying for peace and calm for Ella.

Love, Lesli, Brendan and kids.

Joan and Steve Odell on August 17th, 2007 at 5:42 pm #

We pray for her little body to rest well through tonight and be strengthened every minute. Her ‘monkey pals’ and God’s angels are watching over her and keeping her safe and well. Prayers are with the two of you for restful and healihg sleep tonight as well as our Sweet Ella. Lord Bless, hugs and prayers, Steve and Joan

Aimee Bryan on August 17th, 2007 at 8:33 pm #

I am so happy Ella is doing better. My Mom and I are praying for you.

monika on August 17th, 2007 at 9:29 pm #

dear ones, everflowing prayers and overflowing love for you each and all and dr. kays and every staffmember as you trust each holy moment in GOD’S GRACE. we love you and lift you for GOD’S BLESSINGS, monika andfamily

Eusey Family on August 17th, 2007 at 9:38 pm #

Sweet dreams Sweet Ella.

We love you.

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