Posted (jooosh) in All Posts on August-31-2007

Oh sweet Ella. Our baby girl is still very puffy. We’re really hoping and praying for a big change over the weekend, but for now we need to be patient. We are trusting that God’s timing is perfect.

Other then her fluid retention, Ella continues to remain stable. She was very awake this morning for nurse Andrea, and her stats have been in a range where Dr. Kays is comfortable. No other major changes at this time.

The only change they’ve made is removing the heparin drip (anticoagulant), and instead are giving her subcutaneous shots of another blood thinning medication called Lovenox. Dad has to look away while the baby girl gets these because they need to poke her in a fleshy part of the body to give them (picture dad shuddering now).

Oh, and they are checking her blood sugar levels too because of the octreotide. Not as bad as a shot, but they do prick her heal to get a drop of blood (and dad shudders again). Come to think if it, I’m not sure why they do this considering they draw blood from her every few hours from an arterial line, but I’m sure there’s a good reason. I’ll be asking that question today though just to be sure.

Tina’s feeling better these days. Hopefully this run on antibiotics will kill the infection for good.

Dad is doing ok as well, except for the moments he selfishly wants to just rescue his baby girl and take her away from all this. I say selfishly because I know with everything in me that God is sovereign and His timing is perfect, but I still want her to just be better now!

This baby girl has been such a blessing to us and to so many others. God knows exactly what needs to be done, what needs to be said, and what seeds will be planted before we can take the next steps.

Lord, continue to confirm your truths in our hearts, and know that our desire is to completely surrender to you. We praise you Lord, for every day we get to spend with our baby girl, and for all the others who are touched by her testimony. Thank you Jesus. Amen.

monika on August 31st, 2007 at 10:57 am #

dearest tina, josh, baby ella, you are so lifted in continual prayer, and yes the psalms are healing balms for sure. GOD always has exactly perfect living words as soon as we ask. that at least is something we dont have to wait for.GOD BLESS AND KEEP YOU ALL, also nurses and doctors. to know ella is to love her, and thanks for your blog efforts i know her strong sweet spirit and the preciousness of every second of life abiding in CHRIST. i am groaning and crying out with you and for you for ella’s healing and COMFORT AND HELP OF THE HOLY SPIRIT. IT IS WHAT OUR LOVING FATHER WANTS THE BEST FOR HER. AMEN

Marge (Indiana friend of Keith & Liz Mueller (Chris' parents) on August 31st, 2007 at 11:01 am #

My most heartfelt prayers for your sweet angel, Ella. God Bless her and keep her in His loving care and may He, in His goodness, give you peace as you travel this difficult journey toward a brighter tomorrow with Ella.

Laura Blackwell on August 31st, 2007 at 11:06 am #

I love this picture that you posted. Her eyes are so alert! Praying especially today for encouragement in Ella’s progress and a special time for you guys with your baby girl.

Joel Snyder on August 31st, 2007 at 11:07 am #

T&J, Good talking to you earlier. My prayers today are for Ella’s reduction in fluid retention. Also one for Dr. Kays so that maybe he will find the key to helping Ella with this problem. I Love and miss You!!!!!!!!!!!! Grandpa

Char Snyder Jordan on August 31st, 2007 at 1:04 pm #

We are grateful that God gave Ella’s parents heart and soul for her survival. All these experiences will be counted for good in your life. We are praying for the medication to take hold. We would love to be there for you. Lol Aunt Char and Jim

John & Estela Williams on August 31st, 2007 at 1:17 pm #

God is in control.. God is in control, this thought continues to cross my mind as I read your updates this afternoon. It’s a difficult thing to do, but it’s the only way. God is in control… love you guys!

Chris & Lori Vodnik on August 31st, 2007 at 2:06 pm #

We continue to ask the Lord for healing and strength. Today Samantha asked about “Elwa da baby” on mom’s computer. May you find comfort in the Lord. And Josh, I TOTALLY understand the needle thing… love you guys.

Angie on August 31st, 2007 at 7:55 pm #

Aww! She looks so good in the picture with her eyes wide open! I pray the fluid will start to go down soon. Sweet dreams Ella ~ Love, Nurse Angie

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