Oct
11
     
Another Bun-derful day(Day 80)
Posted (jooosh) in All Posts on October-11-2007


Ella Renae continues to do well today. They increased her feeds again and are slowly weeing her other meds where they can.

Fluid output still looks good, with a new urine record of 369ccs! Only 18ccs from her chest tubes for the 24 hour period. We really want to see this number get down to zero which should encourage Dr. Kays to pull her chest tubes.

The Bun was having a bit of a cranky moment during her blood gas this morning, which is why her numbers weren’t that great: pH=7.31, cO2=57, pO2=43. We’re not too concerned about it though and her 2pm blood gas will hopefully confirm that.

With the current progress Ella is making, it doesn’t look like we’ll be home for Thanksgiving, but we hope to make it back for Christmas. His timing is perfect though, and we continue to trust in His plan.

Tina and I are anticipating the arrival of Ella’s uncle and cousin this afternoon. It’ll be nice to have some family close by. =)

Thanks for the continued prayer and for keeping up with our little girl. Looking forward to celebrating her beautiful life with all of you in person some day!

UPDATE (12:00am EST) by Tina: Ella had a good day. Her blood gas this morning was not that good, but did end up stabilizing throughout the day during the next two blood gases.

They increased Ella’s feedings to 12ccs per hour, which is great. At 10pm, her chest tube output was 17ccs for the day so far. Her urine output was already 272 ccs! Maybe she will break another record!

They decreased her vent down to 40 breaths per minute at 40% oxygen. Ella seems to be doing well with it and keeping stable through all the changes.

Uncle Rick and Cousin Megan came into town tonight. It has been nice to see them and hang out.

We are praying for a stable night and more fluid reduction for Ella. She seems to be in a holding pattern where she is draining about 15-30ccs per day out of her chest tubes. The good news is that her edema seems to be reducing slowly (all that urine output!).

Please pray specifically that her fluid issue will resolve and for her to continue to take baby steps each day in the right direction.

Thank you for joining us on the journey.


Heidi Ham on October 11th, 2007 at 10:41 am #

Hello to all…..thanks for the updates and all the great news. Ella you are a STUD! Keep up the good fight. You are all my heros :). I love to listen to your faith in our Lord and how He is blessing your lives through all of this. Sending hugs and kisses your way. Love Heidi

Heidi Ham on October 11th, 2007 at 10:42 am #

One more thing! Look at that BEAUTIFUL GIRL…..ah she just warms my heart.

Roxie on October 11th, 2007 at 11:02 am #

I just had to check on Ella one more time before going to bed…. She is looking better all the time. Her skin tones are healthy and pink. She looks adorable!! Good night from Arabia.

Mollie Rosing on October 11th, 2007 at 11:10 am #

Ella Bun looks so cute and I love the festive bow! Thankful for her continued progress and God’s perfect timing. Have fun with Uncle Rick and Cousin Megan! All our love,
the Rosings

Kristen on October 11th, 2007 at 11:39 am #

You Go Girl! So proud of you. What great strengh you have in that little body!

Joel Snyder on October 11th, 2007 at 11:56 am #

WOW!!!! Look at my little “Gator Girl” with that bow on again. You are looking terrific Ella. Have a good day and say hello to your Uncle Rick and cousin Megan for me. Keep up the steady progress. Love, Grandpa!!!!!!

Loren L on October 11th, 2007 at 12:27 pm #

i love your pretty bow! We will pray for your recovery to be just what you need.

Joan and Steve Odell on October 11th, 2007 at 3:22 pm #

Oh my goodness – how pretty your look Ella. So happy that you are progressing and tolerating food so well. Have a wonderful time with your Uncle and cousin – Tina and Josh enjoy your family – prayers and hugs to all of you – Steve and Joan

Kara Snyder on October 11th, 2007 at 5:11 pm #

What a great face. I can so see that mischievous look of her mother’s in those eyes. What a joy it will be to play with her. I can only imagine the trial this all is. Being a parent is exhausting. This, is excessive. I thank the Lord for your strength and perseverance. You bring some much needed churchin’ to those of us who don’t realize how much we need to cling to God. Ok, me. Your love of and trust in the Lord inspires me. Keep it up. He’s using you well right now.

Felix on October 11th, 2007 at 5:51 pm #

It will indeed be a Merry Christmas!

Char Snyder Jordan on October 11th, 2007 at 5:52 pm #

Ella I can see you reving up for Halloween. That bow is really cute. I hope you continue to have wonderful days. I am glad to see you every chance I get. Jimmy says you look great! Keep up the good work. LOL Aunt Char and Jim

Anne on October 11th, 2007 at 7:10 pm #

So happy to share in this ride… especially when things are going so well… you must be feeling so blessed! and …. just …. WOW!

Tammy on October 11th, 2007 at 9:43 pm #

I will be praying for a wonderful Christmas blessing; home to celebrate with family and friends. The Lord is faithful and worthy of our praise!!!
God Bless

Angie on October 11th, 2007 at 9:56 pm #

Another sweet picture of Ella! I’m so happy she had a good day. 🙂 We’re prayin’ hard for the fluid issue to resolve! Sweet dreams baby Ella. ~Nurse Angie

Kelli Billman on October 12th, 2007 at 9:06 am #

Way to go Ella! Keep it up girl!

Dana Chambers on October 13th, 2007 at 7:02 pm #

I noticed that not only does Ella have a new fancy headband — she has her own domain too! You go girl!

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