Posted (Tina) in All Posts on October-27-2007

Ella is doing well today.

Her fever has not returned so we are hoping that it means that she truly does not have an infection. We should know by Monday morning.

They weened her octreotide medicine and fentanyl today too. They expect to be off the octreotide completely within the next day or so. The withdrawal from all of this has made her a bit more fussy and hard to console.

Today I was able to see where the chest tubes were in her back and the incisions seem to be healing well. Her repair scar across her abdomen looks really good. It has started to blend in with her skin and almost become unnoticeable.

Around 3pm, they weened her CPAP pressure down to 6. This is another baby step forward in her progress and she seems to be tolerating it well.

It is so exciting to see Ella take these steps forward. Looking at her today, it’s hard to believe that only 4 weeks ago, she was in such a dark place.

We are so thankful for her progress. Thank you for all of you joining us on your knees and petitioning God to heal and strengthen her body.

Colossians 3:15-16

15 Let the peace of Christ rule in your hearts, since as members of one body you were called to peace. And be thankful.
16 Let the word of Christ dwell in you richly as you teach and admonish one another with all wisdom, and as you sing psalms, hymns and spiritual songs with gratitude in your hearts to God.

Joel Snyder on October 27th, 2007 at 2:03 pm #

Ella, I am glad to hear that your fever is gone and that you are back on track with those baby steps forward. J&T thanks for the update and enjoy the weekend. Love, Grandpa!!!!!!!!!!!!!!!!!!!!

Adrienne - Melissa's sister on October 27th, 2007 at 2:21 pm #

YEAH YEAH YEAH!!!! What a happy post! I’m off to bed and I’ll sleep so well tonight with this being on my mind! : )

Char Snyder Jordan on October 27th, 2007 at 2:46 pm #

We are truly blessed to see your progress Ella. Your little personality is finally coming forth. Hurray, Hurray! We have been blessed here in California. We have a few people who are in need and it seems that many folks are helping those in need. We ar eternally grateful for the small loss of human life. There have been some for sure. We pray for their families. But for the most part we are involved in a giant clean-up situation. All our love to you and your parents for their continual watch for your wellbeing. LOL Aunt Char and Jim

Laura Marold on October 27th, 2007 at 5:16 pm #

Looks like Ella found her mouth today!! The picture of her dozing but holding Daddy’s finger is incredibly sweet. Love from Calif., Laura M.

Brenda Colgate on October 27th, 2007 at 6:24 pm #

Ella looks so sweet! What a difference than the last time I checked her progress online!! Go Ella go!!! I am Megan’s teacher and we hope the card we sent with Megan from our class cheered her up!!
All good thoughts and healing prayers are sent to you with love!!!
Looking forward to more adorable pictures!

John & Estela Williams on October 27th, 2007 at 6:35 pm #

Thank you Lord… for your hand in Ella’s progress. What a blessing it has been to see her progress so well. It was also wonderful to hear from Tina’s Mom today.. it made my day. God is good… all the time!

Love you guys!

Melissa on October 27th, 2007 at 8:53 pm #

All the time God is good!!!
Praise God for His healing touch and Ella’s progress. I am so happy to hear that her fever is gone.
She looks amazing and just so sweet. Those are the cutest pictures.
I hope you all are doing well and getting some rest. Don’t forget to take care of yourselves.
May God’s peace continue to flow as He moves in Ella’s life.
What a blessing and true little miracle she is.
We thank you Lord for your faithfulness. Thank you for continually holding this beautiful family in the palm of your hand.
We praise you that Tina’s family in California is safe and that their lives were spared. Thank you that you don’t give us more then we can handle.
Love, Melissa

Laura Blackwell on October 27th, 2007 at 9:14 pm #

Praise God! She is so beautiful!

The Laz Fam on October 27th, 2007 at 10:14 pm #

such precious pics! i want a print of one of these so I can frame it!
Praying for continued good temp, and no infection!
Love, KTJB

Julie Kirk -Saudi Arabia on October 27th, 2007 at 11:27 pm #

I have a song in my heart for Ella. love, love, love, julie

Linda Smith on October 28th, 2007 at 6:57 am #

My nephew is Will Winkler who works in the ICU with Ella. She has stolen his heart and sent this sweet story on to us. Our family has been in some of the steps you are walking and we know we never walk it alone. Just know that people that will probably never know Ella will pray for her daily! God bless! Linda Smith

Joanne on October 28th, 2007 at 1:54 pm #

i’ve been following your sweet girl’s journey for a little while now and wanted to let you know that i am praying for her. i’m so relieved to see that her fever is gone and i’m so happy she keeps getting better every day. my little boy was born in March with R-CDH and i know what a roller coaster ride this is. i belong to a wonderful group for CDH families that has been very informative and supportive. here is the link if you would like to check it out http://health.groups.yahoo.com/group/BreathofHope/

Tammy on October 28th, 2007 at 4:36 pm #

Wonderful news!!! My thoughts and prayers are with you sweet Ella. Hold tight to mom and dad’s finger while you sleep precious one. You are a blessing.

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