Posted (Tina) in All Posts on June-12-2009

Ella’s day was better.

She had one meltdown moment that lasted 45 minutes. I think her belly was giving her some grief, so after trying everything including venting via her g-tube, I gave her some medicine. Shortly thereafter, she calmed down. Although it is not fun to have her worked up for that long while she is screaming in my ear, sweating profusely and requiring huge amounts of O2, the good news is that she did not pass out. I consider that a positive sign.

This morning, I increased her diuretic, Aldactazide, per the doctor’s orders. This increase will help with any fluid issues, if she is having any. Knowing Ella, that would not be out of the question. I can only hope the increase in medicine made the difference and that is why the meltdown today was more “normal” for Ella. The next few days will be telling.

We were thinking of going to the mountains the weekend after this one, but based on Ella’s latest condition, we have placed that idea on hold. Unless she really does a tremendous turn-around, the fresh mountain air at high altitude is probably not a good idea. It would just make her little body work that much harder.

Glad that the weekend is here, so we can enjoy some family time.

Psalm 19:1-2 (NLT)
The heavens proclaim the glory of God.
The skies display his craftsmanship.
Day after day they continue to speak;
night after night they make him known.