Posted (jooosh) in All Posts on June-14-2009

Today we all went out as a family and ran some errands. We’re in the market for patio furniture so most of the time was spent hunting around for things we would like. When we arrived at a location, Tina or I would take turns going in to take a look around while the other stayed in the car with the Bun. We brought her along inside one time though, doing our best to minimize any undue exposure.

At this moment I’m very relieved about the fact that Ella has not passed out since we increased her diuretic. I’m happy about this for two reasons: First, she’s not passing out. Secondly, if the passing out trend were to continue, we would have to pursue other invasive procedures to determine the cause.

We are so thankful for the progress Ella has made, and she has made incredible progress, but it is still difficult. We’re reminded every time we see another “healthy” child running around, often times even younger than Ella. Then, we catch ourselves and His truth comes to mind. Tonight, I had a traditional doxology placed on my heart. This is the final verse of a hymn written in 1674 by Thomas Ken:

Praise God, from Whom all blessings flow;
Praise Him, all creatures here below;
Praise Him above, ye heavenly host;
Praise Father, Son, and Holy Ghost.

We continue to trust in our Lord and Savior, knowing that He has a perfect plan for her life. We’re so blessed that He chose us to be her parents.