Tina and our sweet neighbor went out for some girl time so I chilled out with the Bun. Obviously her hairstyle and outfit represent who’s taking care of her =).

Overall it was a pretty mellow day, but Ella did have one hairy meltdown moment where she desaturated again very quickly. She didn’t fully pass out, but I think she gets scared which makes it worse. It’s not fun to experience these and I hope we get some more direction next week. Ella’s pulmonologist is out of town so we’re waiting to discuss some of the details with him.

Praying we find a solid solution in the coming days that doesn’t require any invasive procedures.