Posted (Tina) in All Posts on May-15-2008

Ella had a good appointment with Dr. Kathy Sarantos. She is such a sweet person as well as an excellent doctor. We’re really going to miss her.

We’ve graduated to being able to expand Ella’s diet to include some other foods. We just have to introduce them slowly and make sure that the foods do not have a negative impact on her respiratory status. We’re looking forward to trying some different things as the days pass.

Ella did pretty well on the bottle. This morning, she took 30ccs at her morning feed within 2 minutes. After that, she was worn out. But it shows that when she has the endurance, she can do it. I think that it will take a long time, but growth and strength over the days and months will translate into a lot for Ella.

We are having lots of challenges with the durable medical equipment company. We contacted them at the beginning of April and they have still not provided the equipment needed for our move. Fortunately, the current company has given up permission to borrow some of the equipment and return it when we arrive in Colorado, but we still need to make sure that we have oxygen, for example. There are lots of details that I am not sharing here, but trust me, it has been a hassle and I’m just hopeful that it will all come together in the end.

The items on Craigslist are moving along at a good pace. We only have a few more large items to sell, which has worked out great. Josh will be leaving in 9 days to start the drive and we will be waling in our front door in 16 days!

On a final note, we have two prayer requests.

First, please say a prayer for Ella’s cousin, Richard. Just yesterday, he was playing outside in a tree when the branch broke. He fell 10 feet and landed face first on the concrete. Praise God that he simply has a concussion and a fractured bone above his eye. His head, neck and everything else checked out fine. Gotta love little boys!

On an even more serious note, Josh just found out today that his half-sister passed earlier this week when she was found in her apartment in NYC. Although they were not especially close, it was sudden and unexpected. Please pray for the family and friends that are affected by this loss.

Thanks so much for all the support and love from all of you.

Jim and Char Jordan on May 15th, 2008 at 9:05 pm #

She has such a wonderful smile and seems to know just what she is doing. We will pray for things to fall into place in the end and endurance for you Josh and Ella. LOL Aunt Char and Jim

Joel Snyder on May 16th, 2008 at 1:06 am #

Ella, Happy to hear that your checkup with Dr.Sarantos went well. Sorry to hear about cousin Richard I will be saying a special prayer for him. Josh I am sorry to hear about your sister and pray for you and the rest of the family in this stressful time. Check on you three later. Love,Grandpa!!!!!!!!!!!!!!!!!!!!!!!!!!!

tamara tessmer on May 16th, 2008 at 4:57 am #

I can not beleive that you are going home. I get goose bumps everytime I think about it. What will Florida do without the Bun. I am very excited for you. What a huge milestone for Ella. SHe really looks great. It is truly mind blowing when you know everything that she endured. Josh. I still remember your unwavering faith. I recall conversations with you saying “I know that I am taking my baby girl home” Praise God, that day is almost here. Really wish I could see you one last time before you leave, but the timing is really bad. Please know you are in my prayers and thoughts. I will never forget the lessons that your precious child has taught me, and the faith that both of you have displayed. I hope to see you again some day. Life would not be right any other way. SHaring this journey with you has been a true blessing. Thank you.
In Christ,

Steve and Joan Odell on May 16th, 2008 at 5:55 am #

Prayers for all your concerns – we are so sorry about your sister Josh. Hugs – Steve and Joan

Tom, LoriAnn, Tyler, Zackary, Seth, Jonny Kuhn on May 16th, 2008 at 6:04 am #

Josh, I am so sorry for the loss of your sister. Even though you may not have been close, I hope she is one of the first to greet you at Heaven’s Gate. Having four boys myself, I am sure the Richard is going to be fine. Yes, he had an angel soften his landing. I have been to the emergency room more times than I can count and my oldest is only 11! Broken bones, plenty of stitches and a few close calls have all lead to our faith becoming stronger. You are blessed with a wonderful girl that I hope grows into a little princess, frills and all! My sister lives in Colorado Springs with all 6 of her girls (and two boys) and you can sure tell the difference. Love to you and your family. The Kuhn Family (Washington State)

John & Estela Williams on May 16th, 2008 at 7:20 am #

Ella… you look so beautiful all in pink. I read your daily blog, just haven’t written in a few days, have my parents in town and loving their visit. Boys will be boys… I have two and trust me, I am always on guard when they are playing. Love you guys and can’t wait to love on you guys here in Colorado.

the Lizotte family on May 16th, 2008 at 7:21 am #

Ella looks beautifull. Time seems to be flying by now. I’m sorry for the loss of your half sister. And I pray that your cousin gets better, and for Ella to keep making her fabulous progress

Ani on May 16th, 2008 at 4:07 pm #

Ella is just so cute…I love seeing new pictures of her. Josh, I am so sorry for your loss. All of you are in my prayers.

Lesli on May 16th, 2008 at 6:02 pm #

Praising God for Ella…..wrote a piece on her on my blog today at

Love, Lesli

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