Posted (Tina) in All Posts on July-15-2008

Ella seemed to have more congestion than normal today. I’m not clear on why it was so much worse. But it made for a tough day with lots of coughing, retching and gagging.

Her PT came for another visit. We tried a new tummy toy that she received as an early birthday gift. That seemed to work well although it still required both of us to coordinate her using it. It just gives us another option for providing tummy time.

You can tell that her head and neck muscles are getting stronger. Overall, she seems to be tolerating a lot more physical therapy. I’m happy about that improvement.

Although today, the PT pushed for her to do too much coordination all at once and Ella rebelled. She was tolerant through a lot of it, but then lost her cool. That ended the session earlier than planned but gave us time to reflect and decide what we will try differently tomorrow.

Katie came to visit us one last time tonight, as she was concluding her business trip. It was so nice of her and Ani to make a point to visit us while they were in Denver. I certainly miss my friends from work and it was a nice treat to hang out with them since last weekend.

On another note, for those of you that subscribe to our email notifications, we sent an email a couple of weeks ago reminding about Ella’s Time Capsule. This is an opportunity for you to write a message directly to Ella. At the appropriate time of maturity in her teen years, we will give the Time Capsule to her as a gift. She will be able to read and reflect on how her life has impacted so many others. Be on the lookout for a reminder via the email notifications and if you have not subscribed, it is a good time to get on the list.

Thanks for all the love, support and prayers. It is a big day for the three of us next week and we are so blessed to have Ella Renae in our life. Happy 51 Weeks Ella!