Posted (Tina) in All Posts on July-15-2008

Ella seemed to have more congestion than normal today. I’m not clear on why it was so much worse. But it made for a tough day with lots of coughing, retching and gagging.

Her PT came for another visit. We tried a new tummy toy that she received as an early birthday gift. That seemed to work well although it still required both of us to coordinate her using it. It just gives us another option for providing tummy time.

You can tell that her head and neck muscles are getting stronger. Overall, she seems to be tolerating a lot more physical therapy. I’m happy about that improvement.

Although today, the PT pushed for her to do too much coordination all at once and Ella rebelled. She was tolerant through a lot of it, but then lost her cool. That ended the session earlier than planned but gave us time to reflect and decide what we will try differently tomorrow.

Katie came to visit us one last time tonight, as she was concluding her business trip. It was so nice of her and Ani to make a point to visit us while they were in Denver. I certainly miss my friends from work and it was a nice treat to hang out with them since last weekend.

On another note, for those of you that subscribe to our email notifications, we sent an email a couple of weeks ago reminding about Ella’s Time Capsule. This is an opportunity for you to write a message directly to Ella. At the appropriate time of maturity in her teen years, we will give the Time Capsule to her as a gift. She will be able to read and reflect on how her life has impacted so many others. Be on the lookout for a reminder via the email notifications and if you have not subscribed, it is a good time to get on the list.

Thanks for all the love, support and prayers. It is a big day for the three of us next week and we are so blessed to have Ella Renae in our life. Happy 51 Weeks Ella!

Joel Snyder on July 16th, 2008 at 1:58 am #

Ella, Sorry to hear that you are having some congestion. I hope that it gets better. You are such a lucky girl to have friends like Ani and Katie to come and visit you. I hope things keep going good with PT and OT. I will be coming to see you tommorow. Love,Grandpa!!!!!!!!!!!!!!!

Steve and Joan Odell on July 16th, 2008 at 6:49 am #

Hello bright eyes – you are so cute!!! Hang in there with all the therapy things – you will be stronger and stronger as the days progress. Enjoy tummy time!! Love and hugs – Steve and Joan

Carol Ellis on July 16th, 2008 at 6:57 am #

It is so good to see Ella and her family at home. We miss you in Florida, but know that healing and comfort is so much better when it is in your true home. Hugs and Kisses to Ella from Alliance Pediatrics.

Laura Brown (steve's sis) on July 16th, 2008 at 7:24 am #

You know, it’s weird, all of my kids started coughing yesterday too. I wonder if it has something to do with this crazy weather. Maybe when it is this dry your body rebels by producing more mucus. =)
BTW… we will no longer be neighbors. We are moving to WV on Tuesday. So I’ll wish Ella an early birthday. Happy Birthday ELLA! You have been an inspiration to me – so have your parents. =) TTFN!

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