Posted (Tina) in All Posts on June-2-2009

As a new twist, we started this morning in the bath. In order for this to work, I make sure that I have at least one cup of java in my system. The experience can go good or bad. I need the coffee to make sure I can be alert and respond appropriately.

Once I coax Ella into the idea that it is time to start the day and she is smiling at me, I introduce her to the bubbles. Today’s bath was good, better than the one the other morning. Reflecting back, I think it might be the best time. She has had the most sleep and is more tolerant of something she doesn’t think is “that great”. Of course, I’m hoping that bubbles become a great treat for her, just like they can be for me.

The OT session today warmed up with feathers. Then, we graduated to pinto beans and rice. Ella let the OT work with her for 48 minutes non-stop. The OT was really pleased with how much Ella tolerated her touching her face, cheeks and lips. Also, Ella did pretty well with the z-vibe on the vibrate mode. All of this tactile stimulation that will gradually help Ella to eat someday.

Once Ella had some beauty sleep, it was time for physical therapy. Along with tummy time and the more recent weight-bearing exercises, they tried rolling over across the carpet today. Back and forth, back and forth…all in an effort to reinforce the moves necessary for Ella to do this herself from her belly to back.

Ella’s weight actually decreased a bit this morning. She is maintaining small fluctuations around 11 kilos (24 pounds). I just know that the volume of food needs to go up, but we need to be patient! A week from today, we will be heading to the Children’s Hospital and getting a better idea concerning next steps.

On a personal note, this passage really stood out to me today, especially as I am exploring next steps for myself:

Romans 12:6-8 (NLT)
In his grace, God has given us different gifts for doing certain things well. So if God has given you the ability to prophesy, speak out with as much faith as God has given you. If your gift is serving others, serve them well. If you are a teacher, teach well. If your gift is to encourage others, be encouraging. If it is giving, give generously. If God has given you leadership ability, take the responsibility seriously. And if you have a gift for showing kindness to others, do it gladly.

One gift that Ella has is that amazing smile. It continues to melt my heart each day.

Thanks for all the thoughts and prayers as we continue this journey with our miracle baby girl.

Vanessa on June 2nd, 2009 at 8:52 pm #

She is lovely!

lorette on June 3rd, 2009 at 1:56 am #

She is so-o-o-o-o cute! Kind Regards from South Africa

Jennifer Harris on June 3rd, 2009 at 7:59 am #

We love Ella’s smile as it places a warmth inside us every single time we see her special photos! Her eyes are amazing as well. Thanks again for sharing.
jennifer & chelsea

Katy Swiergosz on June 3rd, 2009 at 8:07 am #

Seeing Ella smile makes me smile. Thanks for sharing such wonder photos today.

Joel Snyder on June 4th, 2009 at 10:42 am #

Ella, I am really excited to see you making steady progress with both OT and PT. Your pictures are so cute and I can tell that you are having a great time. Tina I hope that you will follow the gift that you have for being the great Mother of a miracle child. I also hope you can get back to the great gift you have in your chosen industry. I am praying for you and hope your new adventures go well. I will catch you later. Love,Grandpa!!!!!!!

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