Posted (Tina) in All Posts on June-5-2009

It was a relaxing day with Ella.

It’s hard to see, but she has a small bruise under her right eye. The other night, she was going crazy in her exer-saucer and seemed to be having a great time. All of a sudden, she started crying hard. I wasn’t sure what happened at the time, but then the bruise showed up. Poor Bun!

We’re excited for her doctor appointments on Tuesday. She has not been saturating great. When she gets upset and holds her breath, she is turning blue quickly. Also, it also seems like she is sweating more. She used to do this a lot when she was much younger, especially in the NICU days and shortly thereafter.

We feel like this is something related to her SVC procedure. Maybe the stents are clotting and blocking the flow in/out of her SVC. Dr. Fagan said this was a likely possibility and that the change would probably be subtle. If it isn’t her SVC, something is going on.

It is hard for all of you to tell because I just post the happy pictures. But she is having lots of meltdown moments each day and doesn’t seem to be quite as stable. Please pray for Ella to get stronger and for us to be able to get direction when we visit the doctor on Tuesday.

We’re still seeking the Lord for the next best steps in our lives and looking forward to the weekend for relaxation.

Psalm 119:15 (NIV)
I meditate on your precepts
and consider your ways.

GrandmaSherl on June 6th, 2009 at 5:08 am #

She is so darn cute!!!! My prayer are with all of you.

Joan and Steve Odell on June 6th, 2009 at 9:00 am #

She is so incredible – prayers continue for all things needed for tthe West family. Hugs and love Steve and Joan

Joel Snyder on June 7th, 2009 at 9:07 am #

Ella, I am sorry you bumped your eye and got that bruise. I was happy to see you and I am glad that you will get some answers this week at the doctors. Catch you later. Love,Grandpa!!!!!!!

Marge (A Friend in Indiana) on June 8th, 2009 at 7:55 am #

Ella is so sweet and I wonder what she is telling Mr Frog……My prayers are with you always; may Ella know God’s blessings as He gives her more strength; may you both know His blessings for wisdom in your journey as you care for Ella.

Post a comment

Name:  (required)
Email:  (required)